Канал: Sick Cells

2024 SCD Policy Forum: Closing Remarks

2024 SCD Policy Forum: Closing Remarks

2024 SCD Policy Forum: Guided Break, Meditation and Breathing Exercise

2024 SCD Policy Forum: Guided Break, Meditation and Breathing Exercise

2024 SCD Policy Forum: Session 7, Hill Day Training and Review of Legislative Asks

2024 SCD Policy Forum: Session 7, Hill Day Training and Review of Legislative Asks

2024 SCD Policy Forum: Session 6, Considerations for Cell and Gene Therapy Model

2024 SCD Policy Forum: Session 6, Considerations for Cell and Gene Therapy Model

2024 SCD Policy Forum: Session 5, Community Perspective on HRSA Follow-Up Programs

2024 SCD Policy Forum: Session 5, Community Perspective on HRSA Follow-Up Programs

2024 SCD Policy Forum: Session 4, Insights into the SCD Demonstration and Follow-Up Programs

2024 SCD Policy Forum: Session 4, Insights into the SCD Demonstration and Follow-Up Programs

2024 SCD Policy Forum: Session 3, Progress Updates about the SCD Data Collection Program

2024 SCD Policy Forum: Session 3, Progress Updates about the SCD Data Collection Program

2024 SCD Policy Forum: Session 2, Updates on SCD Treatment Act of 2023

2024 SCD Policy Forum: Session 2, Updates on SCD Treatment Act of 2023

2024 SCD Policy Forum: Session 1, Keynote Address

2024 SCD Policy Forum: Session 1, Keynote Address

Sick Cells Community Webinar: Information on the 2023 FDA Advisory Committee for Gene Therapy.

Sick Cells Community Webinar: Information on the 2023 FDA Advisory Committee for Gene Therapy.

2023 Coverage for SCD Summit

2023 Coverage for SCD Summit

2023 National SCD Policy Forum: Next Generation

2023 National SCD Policy Forum: Next Generation

National SCD Policy Forum 2023

National SCD Policy Forum 2023

Project SCoviD: A Sickle Cell Disease Community Resource

Project SCoviD: A Sickle Cell Disease Community Resource

Community-Based Participatory Research (CBPR) for Patient Preference Data

Community-Based Participatory Research (CBPR) for Patient Preference Data

Medicaid Access & Landscape Review

Medicaid Access & Landscape Review

Hispanic Outreach Promoting Equity Project

Hispanic Outreach Promoting Equity Project

Sickle Cell Disease State Policy Analysis & Repository

Sickle Cell Disease State Policy Analysis & Repository

2022 Coverage for SCD Summit: Event Recording

2022 Coverage for SCD Summit: Event Recording

2022 Coverage for SCD Summit: The Patient Perspective (CME Pre-Read/Supplemental)

2022 Coverage for SCD Summit: The Patient Perspective (CME Pre-Read/Supplemental)

Sickle Cell Disease & Blood Donation

Sickle Cell Disease & Blood Donation

Sick Cells Policy Debrief (4/20/22)

Sick Cells Policy Debrief (4/20/22)

COVID-19 Community Hub for Sickle Cell Disease

COVID-19 Community Hub for Sickle Cell Disease

Sickle Cell Disease Caregiver Help Desk

Sickle Cell Disease Caregiver Help Desk

Medicaid Drug Utilization Review Board: Centering the Patient Voice

Medicaid Drug Utilization Review Board: Centering the Patient Voice

The Making of Sick Cells' Advocacy Map

The Making of Sick Cells' Advocacy Map

Sick Cells & Avalere Health: Advancing Care for Sickle Cell Disease, a Strategic Roadmap

Sick Cells & Avalere Health: Advancing Care for Sickle Cell Disease, a Strategic Roadmap

COVID Convos: Pregnancy, SCD, and COVID-19 (8.27.21)

COVID Convos: Pregnancy, SCD, and COVID-19 (8.27.21)

COVID Convos: The Kick Off with Dr. Rhea Boyd (6.15.21)

COVID Convos: The Kick Off with Dr. Rhea Boyd (6.15.21)

COVID Convos: Should I Get Vaccinated? A Caregiver's Decision (12.17.21)

COVID Convos: Should I Get Vaccinated? A Caregiver's Decision (12.17.21)

COVID Convos: A Warrior's Pandemic Story (12.10.21)

COVID Convos: A Warrior's Pandemic Story (12.10.21)

COVID Convos: The Faith Community, Working Together (11.19.21)

COVID Convos: The Faith Community, Working Together (11.19.21)

COVID Convos: Pediatric Vaccines, School, & SCD (11.12.21)

COVID Convos: Pediatric Vaccines, School, & SCD (11.12.21)

COVID Convos: NEW Vaccine - Novavax (11.5.21)

COVID Convos: NEW Vaccine - Novavax (11.5.21)

COVID Convos: Community Education, SCD, and COVID-19 Vaccines (10.22.21)

COVID Convos: Community Education, SCD, and COVID-19 Vaccines (10.22.21)

COVID Convos: SCD, Vaccines & Traveling (10.8.21)

COVID Convos: SCD, Vaccines & Traveling (10.8.21)

COVID Convos: Chatting with Dr. Zaidi (9.17.21)

COVID Convos: Chatting with Dr. Zaidi (9.17.21)

COVID Convos: SCD, Caregiving & Being a Leader (10.1.21)

COVID Convos: SCD, Caregiving & Being a Leader (10.1.21)

COVID Convos: SCD, COVID-19 & Keeping the Family Safe (9.10.21)

COVID Convos: SCD, COVID-19 & Keeping the Family Safe (9.10.21)

COVID Convos: Meet the Host #2 (9.3.21)

COVID Convos: Meet the Host #2 (9.3.21)

COVID Convos: Meet The Host #1 (8.20.21)

COVID Convos: Meet The Host #1 (8.20.21)

Terrance & Therapeutic Riding

Terrance & Therapeutic Riding

Marqus & Therapeutic Riding

Marqus & Therapeutic Riding

Sick Cells & Bravehearts Therapeutic Riding

Sick Cells & Bravehearts Therapeutic Riding

You Can be the Reason

You Can be the Reason

I am Dealing With Sickle Cell

I am Dealing With Sickle Cell

Sick Cells at "Improving the Lives of Americans Living with Sickle Cell Disease" Roundtable

Sick Cells at "Improving the Lives of Americans Living with Sickle Cell Disease" Roundtable

Celebrating Marqus, Part 2

Celebrating Marqus, Part 2

Celebrating Marqus, Part 1

Celebrating Marqus, Part 1

No Cuts to Medicaid

No Cuts to Medicaid

Essential Health Benefits

Essential Health Benefits

Derek Share Your Story Vacations and Everyday Life

Derek Share Your Story Vacations and Everyday Life

Derek What Gives You Hope

Derek What Gives You Hope

Pam Share Your Story Costs and Management of Sickle Cell Disease

Pam Share Your Story Costs and Management of Sickle Cell Disease

Pam Share Your Story Hospital Bills

Pam Share Your Story Hospital Bills

Pam Share Your Story Multiple Medical Appointments

Pam Share Your Story Multiple Medical Appointments

Pam Share Your Story Pain is Different

Pam Share Your Story Pain is Different

Pam Share Your Story Why Pam Shares Her Story

Pam Share Your Story Why Pam Shares Her Story

Derek Share Your Story Impacts of Sickle Cell Disease

Derek Share Your Story Impacts of Sickle Cell Disease

Derek Share Your Story Managing Pain Crises at Home

Derek Share Your Story Managing Pain Crises at Home

Derek Share Your Story Same Sickle Cell Different Symptoms

Derek Share Your Story Same Sickle Cell Different Symptoms

Sick Cells' Webinar Series Part 4 'Call to Action for the SCD ICER Review'

Sick Cells' Webinar Series Part 4 'Call to Action for the SCD ICER Review'

Sick Cells' Webinar Series Part 3: 'Examining the Cost of SCD'

Sick Cells' Webinar Series Part 3: 'Examining the Cost of SCD'

Sick Cells Webinar Series Part 2: 'Drug Pricing & Coverage'

Sick Cells Webinar Series Part 2: 'Drug Pricing & Coverage'

Sick Cells Webinar Series Part 1: 'FDA Approval, Now What '

Sick Cells Webinar Series Part 1: 'FDA Approval, Now What '