Канал: Rowan is TumorStrong

NASA Kennedy Space Center Sensory Experience #tumorstrong

NASA Kennedy Space Center Sensory Experience #tumorstrong

Milestone!

Milestone!

When you are not tall enough but still want to play on the monkey bars #tumorstrong

When you are not tall enough but still want to play on the monkey bars #tumorstrong

1 month Prior to brain tumor diagnosis.

1 month Prior to brain tumor diagnosis.

Letting the child set up the game

Letting the child set up the game

Play Peek-A-Boo with me!

Play Peek-A-Boo with me!

Using chalk during outside play to help with pre-writing motor skills

Using chalk during outside play to help with pre-writing motor skills

Motor skills practice. Gluing paper. Prek activity. Pre-writing skills.

Motor skills practice. Gluing paper. Prek activity. Pre-writing skills.

Motor skills practice. Ripping paper. Occupation therapy

Motor skills practice. Ripping paper. Occupation therapy

Library Story Time. Song and dance.

Library Story Time. Song and dance.

Why is poop so funny to kids?

Why is poop so funny to kids?

Working on sitting, shifting weight, crossing midline, balance. 7 month old.

Working on sitting, shifting weight, crossing midline, balance. 7 month old.

Infant seizure. Gelastic seizure. Cluster seizures. Partial awareness seizure.

Infant seizure. Gelastic seizure. Cluster seizures. Partial awareness seizure.

Eye flutter seizure. Focal seizure in child. #seizures

Eye flutter seizure. Focal seizure in child. #seizures

Intense gelastic seizure. Laughing seizure related to hypothalamic hamartoma. #tumorstrong

Intense gelastic seizure. Laughing seizure related to hypothalamic hamartoma. #tumorstrong

Gelastic seizure. Hypothalamic hamartoma brain tumor causes laughing seizures.

Gelastic seizure. Hypothalamic hamartoma brain tumor causes laughing seizures.

Gelastic seizure in child. Appears to cluster. Laughing seizure. Hypothalamic hamartoma.

Gelastic seizure in child. Appears to cluster. Laughing seizure. Hypothalamic hamartoma.

Hypothalamic hamartoma symptom: an urgency to run. This is not an urgency to elope, but to run.

Hypothalamic hamartoma symptom: an urgency to run. This is not an urgency to elope, but to run.

Gelastic seizure. Laughing seizure. Gelastic seizures can present at different intensities.

Gelastic seizure. Laughing seizure. Gelastic seizures can present at different intensities.

Cold therapy for kids. Bringing body temperature down to help regulation. #behavior #regulation

Cold therapy for kids. Bringing body temperature down to help regulation. #behavior #regulation

Childhood seizure #seizuredisorder #braintumor #hypothalamichamartoma

Childhood seizure #seizuredisorder #braintumor #hypothalamichamartoma

Motor delay. Motor skills play for child.

Motor delay. Motor skills play for child.

Gelastic seizure! Laughing seizure! More movement prior and during seizure.

Gelastic seizure! Laughing seizure! More movement prior and during seizure.

What is a hypothalamic hamartoma?

What is a hypothalamic hamartoma?

Hello mama! Astronaut baby!

Hello mama! Astronaut baby!

Sensory slide at NASA Visitor Center

Sensory slide at NASA Visitor Center

Hospital life for 4 month old. Infant EEG and brain tumor diagnosis. Hypothalamic hamartoma.

Hospital life for 4 month old. Infant EEG and brain tumor diagnosis. Hypothalamic hamartoma.

Fine Motor skills play. PreK activity. Color and shape recognition.

Fine Motor skills play. PreK activity. Color and shape recognition.

Toddler cleaning up after himself

Toddler cleaning up after himself

Christmas

Christmas

Brain Surgery Scars

Brain Surgery Scars

He would not be him without his disability.

He would not be him without his disability.

#tumorstrong

#tumorstrong

Air Fiddle

Air Fiddle

Awareness and Reframing behaviors

Awareness and Reframing behaviors

Yoto Player. First time using

Yoto Player. First time using

Sleep Disturbances

Sleep Disturbances

Gelastic Seizure. Laughing seizure.

Gelastic Seizure. Laughing seizure.

5 week old seizure. Infant seizure.

5 week old seizure. Infant seizure.

Caught red handed

Caught red handed

Taking a break. The park is too much!

Taking a break. The park is too much!

Feeling broken

Feeling broken

Redirecting Emotions & Fine Motor Play

Redirecting Emotions & Fine Motor Play

Toddler chasing bird at beach

Toddler chasing bird at beach

Infant seizure

Infant seizure

4 month old seizure

4 month old seizure

Kindness of strangers

Kindness of strangers

Jokes Soda

Jokes Soda

Mario Plushies

Mario Plushies

Making tortillas

Making tortillas

Self feeding

Self feeding

Do you have those days? What do you do?

Do you have those days? What do you do?

Toddler stunt gone wrong

Toddler stunt gone wrong

Torticollis and a seizure

Torticollis and a seizure

PT for toddlers animals

PT for toddlers animals

Free SeaWorld passes

Free SeaWorld passes

Therapy after brain surgery

Therapy after brain surgery

Ophthalmology visit

Ophthalmology visit

Telling me what he wants

Telling me what he wants

Daddy reading to newborn

Daddy reading to newborn

Socks as a sensory need

Socks as a sensory need

Accessibility

Accessibility

Someone is excited to be at the hospital for his 2nd brain surgery

Someone is excited to be at the hospital for his 2nd brain surgery

EEG measuring and application

EEG measuring and application

What an ultrasound cannot identify

What an ultrasound cannot identify

Sometimes all you can do is rest your head

Sometimes all you can do is rest your head

Motor Skills and Using a Track Pad

Motor Skills and Using a Track Pad

Anticipatory Grief & Masking

Anticipatory Grief & Masking

Best toothbrush for Special Needs

Best toothbrush for Special Needs

Fine Motor Skills and Regulating a hard time

Fine Motor Skills and Regulating a hard time

Toddler running

Toddler running

Ask your child: How can I help? Don’t ask: What’s wrong?

Ask your child: How can I help? Don’t ask: What’s wrong?

Baby climbing tree

Baby climbing tree

Motor Delay in older child and not in 2 year old. Play looks different.

Motor Delay in older child and not in 2 year old. Play looks different.

3 seizures and switching between them. Crying, laughing, focal seizures. Dacrystic & Gelastic

3 seizures and switching between them. Crying, laughing, focal seizures. Dacrystic & Gelastic

Cold Therapy for Children

Cold Therapy for Children

Dacrystic Seizure (Crying seizure)

Dacrystic Seizure (Crying seizure)

After 1st brain surgery

After 1st brain surgery

Applying an EEG for a child

Applying an EEG for a child

Practicing Motor Skills with tracking

Practicing Motor Skills with tracking

MRI prior to 1st brain surgery

MRI prior to 1st brain surgery

Brain surgery day

Brain surgery day

17 days until 2nd brain Surgery

17 days until 2nd brain Surgery

Sensory learning through play

Sensory learning through play

Self regulation

Self regulation

Playing turns to Laughing (gelastic) seizure

Playing turns to Laughing (gelastic) seizure

3 seizures in less than 3 minutes

3 seizures in less than 3 minutes

Miracle Fights, a flight for brain surgery

Miracle Fights, a flight for brain surgery

Update video. Hypothalamic Hamartoma Brain Tumor. Surgery upcoming.

Update video. Hypothalamic Hamartoma Brain Tumor. Surgery upcoming.

Focal eye hard blinking seizures. Head jerks. Myoclonic.

Focal eye hard blinking seizures. Head jerks. Myoclonic.

Emotions with kids 3 and under

Emotions with kids 3 and under

Laughing seizure. Gelastic seizure resulting from hypothalamic hamartoma.

Laughing seizure. Gelastic seizure resulting from hypothalamic hamartoma.

Gelastic Seizure (laughing seizure)

Gelastic Seizure (laughing seizure)

Newly developed stutter following increased seizure medication

Newly developed stutter following increased seizure medication

Gelastic seizure in 2 1/2 year old

Gelastic seizure in 2 1/2 year old

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A0737249 B1E7 47F4 9EA5 61895417C997

043B623B 05A3 44C9 A3BE 4905D504E168

043B623B 05A3 44C9 A3BE 4905D504E168

Eye flutter seizures in 4 month old, cluster seizures

Eye flutter seizures in 4 month old, cluster seizures

Hypertonia in child under 1 month old due to seizure activity

Hypertonia in child under 1 month old due to seizure activity

4 month old eye flutter seizures

4 month old eye flutter seizures

Seizure medication withdrawal in 4 month old infant during eeg monitoring

Seizure medication withdrawal in 4 month old infant during eeg monitoring

6 month old learning to sit in hospital

6 month old learning to sit in hospital

5 month old cluster seizures

5 month old cluster seizures

5 month complex partial cluster seizures

5 month complex partial cluster seizures

Eye flutter seizure

Eye flutter seizure

Status epilepticus in 4 month old

Status epilepticus in 4 month old

Myoclonic seizure in 5 month old

Myoclonic seizure in 5 month old

Assembly of Bright Stars Raptor walker

Assembly of Bright Stars Raptor walker

Riding in bright stars raptor walker

Riding in bright stars raptor walker

Sounds on the Bright stars raptor 3 way walker

Sounds on the Bright stars raptor 3 way walker

Assembly of Bright stars raptor 3 ways walker

Assembly of Bright stars raptor 3 ways walker

Assembly of Bright stars raptor 3 ways walker

Assembly of Bright stars raptor 3 ways walker

Assembly of Bright stars raptor 3 ways walker

Assembly of Bright stars raptor 3 ways walker