Канал: Life with Stripes

Accessing My Own Port For The First Time! (And an IV Bag Accident!)

Accessing My Own Port For The First Time! (And an IV Bag Accident!)

We Ranked Our WORST Symptoms! Ft. @Izzy Kornblau

We Ranked Our WORST Symptoms! Ft. @Izzy Kornblau

My sister is very sick and needs your prayers (UPDATE)

My sister is very sick and needs your prayers (UPDATE)

Reacting to the Ehlers Danlos Episode of Casualty

Reacting to the Ehlers Danlos Episode of Casualty

Tried to Film a Video but Almost Had a Panic Attack..

Tried to Film a Video but Almost Had a Panic Attack..

Come Hang Out With Me! Livestream

Come Hang Out With Me! Livestream

I'M 20 YEARS OLD TODAY!!!

I'M 20 YEARS OLD TODAY!!!

Meet the Newest Member of the Stripes Family!!!

Meet the Newest Member of the Stripes Family!!!

We Need To Talk...

We Need To Talk...

All About Adrenal Insufficiency

All About Adrenal Insufficiency

How I Drain My Feeding Tube

How I Drain My Feeding Tube

My Morning Feeding Tube Routine

My Morning Feeding Tube Routine

Knee Surgery Vlog!

Knee Surgery Vlog!

Get Ready With Me While I Answer Questions About My Chronic Illness!

Get Ready With Me While I Answer Questions About My Chronic Illness!

I Broke My Leg and I'm Having Surgery

I Broke My Leg and I'm Having Surgery

Day in the Life of a College Student with a Feeding Tube!

Day in the Life of a College Student with a Feeding Tube!

My Shoulder Has Been DISLOCATED For Two YEARS!

My Shoulder Has Been DISLOCATED For Two YEARS!

Going To The Renaissance Festival In A Wheelchair!

Going To The Renaissance Festival In A Wheelchair!

My Best Friend Died

My Best Friend Died

Getting my port accessed on camera (5.6.19)

Getting my port accessed on camera (5.6.19)

Unhooking my feeding tube!?!? (5.5.19)

Unhooking my feeding tube!?!? (5.5.19)

Feeling Frustrated... (5.4.19)

Feeling Frustrated... (5.4.19)

Fixing my Dislocated Joints on Camera (5.3.19)

Fixing my Dislocated Joints on Camera (5.3.19)

Doing Special Effects Make-up! (5.2.19)

Doing Special Effects Make-up! (5.2.19)

I have a RARE GENETIC DISORDER (5.1.19)

I have a RARE GENETIC DISORDER (5.1.19)

No one talks about the grief and the sadness....

No one talks about the grief and the sadness....

MY FAVORITE FEEDING TUBE PRODUCTS!!!

MY FAVORITE FEEDING TUBE PRODUCTS!!!

Addressing the Rumors..... (UNEDITED)

Addressing the Rumors..... (UNEDITED)

Freearm Tube Feeding Assistant *SPONSORED*

Freearm Tube Feeding Assistant SPONSORED

So much has happened in 2018, let’s review!!

So much has happened in 2018, let’s review!!

DIFFICULT HOSPITAL STAY | Testing Testing Testing...

DIFFICULT HOSPITAL STAY | Testing Testing Testing...

18th Birthday Live Stream Q&A

18th Birthday Live Stream Q&A

18th Birthday Live Stream Q&A

18th Birthday Live Stream Q&A

Passing Out at PT and First Iron Infusion (Day in my Life)

Passing Out at PT and First Iron Infusion (Day in my Life)

Taking Advantage of a Good Day

Taking Advantage of a Good Day

The Truth About My EDS - I WAS MISDIAGNOSED!!!

The Truth About My EDS - I WAS MISDIAGNOSED!!!

I Finally Cut My Hair! *DRASTIC*

I Finally Cut My Hair! DRASTIC

Thousands Fight Against This Rare Disorder.... (Ehlers Danlos Syndrome)

Thousands Fight Against This Rare Disorder.... (Ehlers Danlos Syndrome)

My First Mayo Clinic Appointments! *Health Update*

My First Mayo Clinic Appointments! Health Update

Having a HIDA Scan!

Having a HIDA Scan!

Day In My Life Gone Wrong.... Emergency GJ Tube Change

Day In My Life Gone Wrong.... Emergency GJ Tube Change

How I Store all of my Medical Supplies (Feeding Tube, Central line, Medication etc)

How I Store all of my Medical Supplies (Feeding Tube, Central line, Medication etc)

EHLERS DANLOS CHALLENGE *EDS Awareness Month 2018*

EHLERS DANLOS CHALLENGE EDS Awareness Month 2018

Why I've Been Gone...

Why I've Been Gone...

Just a Quick Q&A

Just a Quick Q&A

Growth Hormone Stimulation testing and SCARY BLOOD SUGAR CRASH

Growth Hormone Stimulation testing and SCARY BLOOD SUGAR CRASH

2018 Tim Orth Memorial Foundation Fundraiser!!!

2018 Tim Orth Memorial Foundation Fundraiser!!!

Happy Easter! Egg hunt, Family, and Lots of Pain 😕

Happy Easter! Egg hunt, Family, and Lots of Pain 😕

I Have a Rare Form of Dwarfism! Severe Primary IGF-1 Deficiency (GROWTH HORMONE JOURNEY PART ONE)

I Have a Rare Form of Dwarfism! Severe Primary IGF-1 Deficiency (GROWTH HORMONE JOURNEY PART ONE)

GJ Tube Replacement in Radiology FULL PROCEDURE

GJ Tube Replacement in Radiology FULL PROCEDURE

Getting my GJ Feeding Tube Replaced!!

Getting my GJ Feeding Tube Replaced!!

4,000 SUBSCRIBER GIVEAWAY!!!

4,000 SUBSCRIBER GIVEAWAY!!!

DAY IN MY LIFE with Ehlers Danlos Syndrome, a Feeding tube, and Homeschool

DAY IN MY LIFE with Ehlers Danlos Syndrome, a Feeding tube, and Homeschool

Big Life Update! New Pain Meds, Summer Camp, and Fundraiser!!

Big Life Update! New Pain Meds, Summer Camp, and Fundraiser!!

Rainbow Feeding Tube Formula!!!!!

Rainbow Feeding Tube Formula!!!!!

Feeding Tube Awareness Week | We Are Tubie Strong ❤️

Feeding Tube Awareness Week | We Are Tubie Strong ❤️

How I Feel When People Stare at Me?!?!

How I Feel When People Stare at Me?!?!

The Chronic Illness Tag!!!!

The Chronic Illness Tag!!!!

I Fell Out a 3rd Floor Window.... | Storytime

I Fell Out a 3rd Floor Window.... | Storytime

Adopting my Sister During the Haiti Earthquake

Adopting my Sister During the Haiti Earthquake

Q&A with my Mom | Being a Parent to a Chronically Ill Child

Q&A with my Mom | Being a Parent to a Chronically Ill Child

12 Things Only People with Feeding Tubes Understand (WITH BLOOPERS)

12 Things Only People with Feeding Tubes Understand (WITH BLOOPERS)

Setting up my Infusion and De-Accessing my own Port!!!

Setting up my Infusion and De-Accessing my own Port!!!

Making Tie Blanket Tubie Pads!!!

Making Tie Blanket Tubie Pads!!!

Surgery to Fix My Feeding Tube ☹️ NO MORE BUTTON!!!

Surgery to Fix My Feeding Tube ☹️ NO MORE BUTTON!!!

ER Trip and Admitted to the Hospital 🏥Somethings Wrong with my Feeding Tube!!!

ER Trip and Admitted to the Hospital 🏥Somethings Wrong with my Feeding Tube!!!

MERRY CHRISTMAS 🎄 New camera, Spending time with family, and feeding tube problems!!

MERRY CHRISTMAS 🎄 New camera, Spending time with family, and feeding tube problems!!

The Brace Race!!! THE CHRONIC ILLNESS GAMES

The Brace Race!!! THE CHRONIC ILLNESS GAMES

Pin the Port on the Patient!! THE CHRONIC ILLNESS GAMES

Pin the Port on the Patient!! THE CHRONIC ILLNESS GAMES

Things I didn't think about until I was in a wheelchair! 🤔

Things I didn't think about until I was in a wheelchair! 🤔

Getting my GJ Mic-key button!!!

Getting my GJ Mic-key button!!!

All about my Custom Wheelchair!!

All about my Custom Wheelchair!!

What's Inside my Medical Backpack!?!?

What's Inside my Medical Backpack!?!?

Post-Surgery Update!

Post-Surgery Update!

SURGERY VLOG PART FIVE!!! De-accessing my port for the first time and going home!!!

SURGERY VLOG PART FIVE!!! De-accessing my port for the first time and going home!!!

SURGERY VLOG PART FOUR!! More about my GJ tube infection and getting to go outside!!

SURGERY VLOG PART FOUR!! More about my GJ tube infection and getting to go outside!!

SURGERY VLOG PART THREE!!! Back in the hospital with an infection

SURGERY VLOG PART THREE!!! Back in the hospital with an infection

SURGERY VLOG PART TWO!! Going home... But not for long!

SURGERY VLOG PART TWO!! Going home... But not for long!

SURGERY VLOG PART ONE!! GJ tube, Port placement, and hip arthrogram

SURGERY VLOG PART ONE!! GJ tube, Port placement, and hip arthrogram

Surgery update: post-op complications and late vlog

Surgery update: post-op complications and late vlog

UPDATE!!! Plans for Surgery!!!

UPDATE!!! Plans for Surgery!!!

How I do my makeup with my feeding tube!!

How I do my makeup with my feeding tube!!

GASTROPARESIS AWARENESS MONTH!!! My Story

GASTROPARESIS AWARENESS MONTH!!! My Story

BLINDFOLDED FEEDING TUBE CHALLENGE!!!

BLINDFOLDED FEEDING TUBE CHALLENGE!!!

Life with Stripes Q&A

Life with Stripes Q&A

Setting up my NJ tube feeds

Setting up my NJ tube feeds

Setting up my feeding tube backpack!

Setting up my feeding tube backpack!

Getting a Feeding Tube 🏥

Getting a Feeding Tube 🏥

Saline infusions for my POTS

Saline infusions for my POTS

I GOT MY CUSTOM WHEELCHAIR!!!!!

I GOT MY CUSTOM WHEELCHAIR!!!!!

Getting a PICC line | My Experience

Getting a PICC line | My Experience

What's in my Hospital Go Bag

What's in my Hospital Go Bag

Setting up Portable infusions with a PICC line

Setting up Portable infusions with a PICC line

Ehlers Danlos Syndrome Q&A

Ehlers Danlos Syndrome Q&A