Канал: Cure Sanfilippo Foundation

What is Assistive Technology and how can it help your child communicate?

What is Assistive Technology and how can it help your child communicate?

First time parents watch video they hope will save their daughter

First time parents watch video they hope will save their daughter

Update on Ultragenyx's Sanfilippo syndrome Type A Gene Therapy program (UX111) - March 26, 2024

Update on Ultragenyx's Sanfilippo syndrome Type A Gene Therapy program (UX111) - March 26, 2024

Saving Veda from Sanfilippo syndrome

Saving Veda from Sanfilippo syndrome

A Message to You on the 10-Year Anniversary of Cure Sanfilippo Foundation

A Message to You on the 10-Year Anniversary of Cure Sanfilippo Foundation

Development of Global Consensus Clinical Care Guidelines for Sanfilippo Syndrome, WORLDSymposium2023

Development of Global Consensus Clinical Care Guidelines for Sanfilippo Syndrome, WORLDSymposium2023

Family Friday | Victoria - What drove you to get your child/children diagnosed?

Family Friday | Victoria - What drove you to get your child/children diagnosed?

Parents' first watch of a video they hope will save their daughter Liv

Parents' first watch of a video they hope will save their daughter Liv

This video can save our 3-year-old daughter's life: #SavingLiv

This video can save our 3-year-old daughter's life: #SavingLiv

Saving Liv - Coming Saturday, Dec. 3

Saving Liv - Coming Saturday, Dec. 3

New Sanfilippo drug repurposing clinical trial; updates on other research + more

New Sanfilippo drug repurposing clinical trial; updates on other research + more

ADVANCE 22 Sanfilippo Conference - Day 1, Part 1

ADVANCE 22 Sanfilippo Conference - Day 1, Part 1

ADVANCE 22 Sanfilippo conference - Day 2, Part 3

ADVANCE 22 Sanfilippo conference - Day 2, Part 3

ADVANCE 22 Sanfilippo conference - Day 2, Part 2

ADVANCE 22 Sanfilippo conference - Day 2, Part 2

ADVANCE 22 Sanfilippo conference - Day 2, Part 1

ADVANCE 22 Sanfilippo conference - Day 2, Part 1

ADVANCE 22 Sanfilippo conference - Day 1, Part 2

ADVANCE 22 Sanfilippo conference - Day 1, Part 2

ADVANCE 22 Sanfilippo conference - Day 1, Part 3

ADVANCE 22 Sanfilippo conference - Day 1, Part 3

TikTok For A Cure - Kickoff from @Love_Logan07

TikTok For A Cure - Kickoff from @Love_Logan07

Alina's Story - One more miracle?

Alina's Story - One more miracle?

Watch this little boy sink baskets like a champ!

Watch this little boy sink baskets like a champ!

WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more

WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more

Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more

Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more

Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more

Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more

How All Stripes can help Sanfilippo syndrome research

How All Stripes can help Sanfilippo syndrome research

Help Simon fight to live and play basketball

Help Simon fight to live and play basketball

BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more

BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more

Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more

Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more

2021 Step Up to Cure Sanfilippo | Wrap-Up Video

2021 Step Up to Cure Sanfilippo | Wrap-Up Video

Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more

Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more

Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more

Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more

Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more

Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more

Free Educator Guide; Dopamine & Reducing Autism Behaviors + more

Free Educator Guide; Dopamine & Reducing Autism Behaviors + more

In Memory of Reagan; New testing created; $1M granted for 5 new projects + more

In Memory of Reagan; New testing created; $1M granted for 5 new projects + more

Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more

Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more

Kids on a mission to save their best friend’s life

Kids on a mission to save their best friend’s life

Save Connor | #shorts

Save Connor | #shorts

Parents' first watch of a video they hope will save dying son

Parents' first watch of a video they hope will save dying son

What Is Sanfilippo Syndrome?

What Is Sanfilippo Syndrome?

Cure Sanfilippo - World Symposium 2021

Cure Sanfilippo - World Symposium 2021

Cure Sanfilippo Gala 2020 - Mission Moments 4

Cure Sanfilippo Gala 2020 - Mission Moments 4

Cure Sanfilippo Gala 2020 - Mission Moments 3

Cure Sanfilippo Gala 2020 - Mission Moments 3

Cure Sanfilippo Gala 2020 - Mission Moments 2

Cure Sanfilippo Gala 2020 - Mission Moments 2

Cure Sanfilippo Gala 2020 - Mission Moments 1

Cure Sanfilippo Gala 2020 - Mission Moments 1

Cure Sanfilippo Gala 2020 - Surprise Introduction!

Cure Sanfilippo Gala 2020 - Surprise Introduction!

We thought it was Autism. What we found out...unimaginable.

We thought it was Autism. What we found out...unimaginable.

2020 "Step Up To Cure Sanfilippo" Highlights Video

2020 "Step Up To Cure Sanfilippo" Highlights Video

Carson's parents have something to say to you

Carson's parents have something to say to you

Sanfilippo Syndrome and the fight to find a cure | Cure Sanfilippo Foundation

Sanfilippo Syndrome and the fight to find a cure | Cure Sanfilippo Foundation

The most important presentation on Sanfilippo Syndrome

The most important presentation on Sanfilippo Syndrome

Q&A Coronavirus and Sanfilippo Syndrome: Dr. Heather Lau

Q&A Coronavirus and Sanfilippo Syndrome: Dr. Heather Lau

Cure Sanfilippo Foundation Live Stream

Cure Sanfilippo Foundation Live Stream

A Saving Eliza Update - November 2019

A Saving Eliza Update - November 2019

Saving Eliza

Saving Eliza

7 year old Beckham wants to save his little sister

7 year old Beckham wants to save his little sister

A dog's devotion like you've never seen: Henry and Blair

A dog's devotion like you've never seen: Henry and Blair

7 year old girl wants to save her little brother's life

7 year old girl wants to save her little brother's life

The Last Chance to Save My Son's Life, from Childhood Alzheimer's. #SavingCarter

The Last Chance to Save My Son's Life, from Childhood Alzheimer's. #SavingCarter

Eliza working on her singing - May 8, 2017

Eliza working on her singing - May 8, 2017

Disney Employee makes Magic Memory for Sick Girls

Disney Employee makes Magic Memory for Sick Girls

Luke & Blair: I Won't Let Go

Luke & Blair: I Won't Let Go

Cure Sanfilippo Foundation Video

Cure Sanfilippo Foundation Video

Saving Rylan - Happy 6th Birthday!

Saving Rylan - Happy 6th Birthday!

Eliza singing with Dad

Eliza singing with Dad

Eliza & Dad

Eliza & Dad

Eliza's Big Brother Beckham's thoughts

Eliza's Big Brother Beckham's thoughts

Thank you from Cure Sanfilippo Foundation Families

Thank you from Cure Sanfilippo Foundation Families

The Moment Parents Learn Fate of Dying Daughter

The Moment Parents Learn Fate of Dying Daughter

Cure Sanfilippo on The Doctors TV Show -11/7/2016

Cure Sanfilippo on The Doctors TV Show -11/7/2016

Eliza Talking 9/10/2016

Eliza Talking 9/10/2016

Cure Sanfilippo: Miracles Happen & Call to Action

Cure Sanfilippo: Miracles Happen & Call to Action