Канал: GBS-CIDP Foundation International

Research Updates from Our Benson Fellows

Research Updates from Our Benson Fellows

Getting Well Outdoors Webinar

Getting Well Outdoors Webinar

2024 EL PFDD MEETING ON GBS, MMN, & ANTI-MAG

2024 EL PFDD MEETING ON GBS, MMN, & ANTI-MAG

First Annual Dr. Arthur Asbury Endowment Lecture

First Annual Dr. Arthur Asbury Endowment Lecture

Speaker Series: Current Treatment Options for GBS, CIDP, MMN, and Variants

Speaker Series: Current Treatment Options for GBS, CIDP, MMN, and Variants

GBS|CIDP Foundation Webinar: Amp Your Social Voice

GBS|CIDP Foundation Webinar: Amp Your Social Voice

Life as a Care Partner

Life as a Care Partner

Speaker Series: Navigating Your Health Care Journey

Speaker Series: Navigating Your Health Care Journey

Walk & Roll for GBS|CIDP and MMN

Walk & Roll for GBS|CIDP and MMN

Cómo ser tu propio defensor de la salud

Cómo ser tu propio defensor de la salud

Speaker Series, How to Be Your Own Health Advocate

Speaker Series, How to Be Your Own Health Advocate

2023 Walk and Roll Season Recap

2023 Walk and Roll Season Recap

Rare Disease Day 2024

Rare Disease Day 2024

Speaker Series Pain

Speaker Series Pain

What is MMN

What is MMN

Variants of GBS|CIDP, Speaker Series

Variants of GBS|CIDP, Speaker Series

Giving Tuesday, Empowered Moments!

Giving Tuesday, Empowered Moments!

An Overview of Advocacy at the GBS|CIDP Foundation International

An Overview of Advocacy at the GBS|CIDP Foundation International

Driving Adaptations and Hand Controls, Ask the Experts

Driving Adaptations and Hand Controls, Ask the Experts

Ask the Experts, Research Update

Ask the Experts, Research Update

Ask the Experts, Your Immune System and Vaccination

Ask the Experts, Your Immune System and Vaccination

Welcome to LifeStyle Lane at the 2023 Symposium

Welcome to LifeStyle Lane at the 2023 Symposium

Ask the Experts, How to Make the Most out of the GBS|CIDP Patient Symposium

Ask the Experts, How to Make the Most out of the GBS|CIDP Patient Symposium

Ask the Experts, What's New in Adaptive Devices

Ask the Experts, What's New in Adaptive Devices

Ask the Experts, Communicating for Success at the Doctor's Office

Ask the Experts, Communicating for Success at the Doctor's Office

Celebrating World Caring Day

Celebrating World Caring Day

Ask the Experts: All About the Foundation

Ask the Experts: All About the Foundation

Ask the Experts: Mental Health Checkup

Ask the Experts: Mental Health Checkup

Department of Defense Peer Reviewed Medical Research

Department of Defense Peer Reviewed Medical Research

International Symposium

International Symposium

Ask the Experts: Managing Reimbursement – Insurance and Financial Assistance Info

Ask the Experts: Managing Reimbursement – Insurance and Financial Assistance Info

Ask the Experts Webinar: Living with MMN Treatment and Care

Ask the Experts Webinar: Living with MMN Treatment and Care

Meet Corbin Whittington, President of the Board of Directors

Meet Corbin Whittington, President of the Board of Directors

What Happened to our IVIG Home Infusion Bill?

What Happened to our IVIG Home Infusion Bill?

Help Raise MMN Awareness

Help Raise MMN Awareness

2023 Ride for MMN

2023 Ride for MMN

Why Volunteer at the GBS|CIDP Foundation International?

Why Volunteer at the GBS|CIDP Foundation International?

GBS|CIDP Foundation International Video

GBS|CIDP Foundation International Video

2022 Ponte Vedra, Florida Symposium

2022 Ponte Vedra, Florida Symposium

Ask the Experts, Episode 19 Facial Paralysis

Ask the Experts, Episode 19 Facial Paralysis

Advocating for State Governments

Advocating for State Governments

Welcome to our Treatment and Access Portal

Welcome to our Treatment and Access Portal

Ask the Experts, Episode 18, All About Plasma

Ask the Experts, Episode 18, All About Plasma

Explanation of the 2022 Research Grant Program Winners

Explanation of the 2022 Research Grant Program Winners

Ask the Experts, Episode 17, Residual Symptoms of the Foot

Ask the Experts, Episode 17, Residual Symptoms of the Foot

2022 Ponte Vedra Beach International Symposium

2022 Ponte Vedra Beach International Symposium

Ask the Experts, Episode 16 Residuals, Pain and Fatigue

Ask the Experts, Episode 16 Residuals, Pain and Fatigue

Managing CIDP Over the Long Term - Julie

Managing CIDP Over the Long Term - Julie

GAMUNEX-C & Me – Bonnie

GAMUNEX-C & Me – Bonnie

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) 101

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) 101

Multifocal Motor Neuropathy (MMN) 101

Multifocal Motor Neuropathy (MMN) 101

Ask the Expert, Episode 15: A Message of Hope from Dr. Dan Gottlieb for GBS|CIDP Awareness Month

Ask the Expert, Episode 15: A Message of Hope from Dr. Dan Gottlieb for GBS|CIDP Awareness Month

Rare Disease Day 2022

Rare Disease Day 2022

Jessica Schexnayder, MMN Patient and Foundation Volunteer.

Jessica Schexnayder, MMN Patient and Foundation Volunteer.

Ask the Expert, Episode 14 Part One: What is MMN and How was it Discovered?

Ask the Expert, Episode 14 Part One: What is MMN and How was it Discovered?

Meet Brenda Perales, MMN Patient and Foundation volunteer.

Meet Brenda Perales, MMN Patient and Foundation volunteer.

Take a Ride for MMN

Take a Ride for MMN

Meet Clive Phillips, MMN Patient and Foundation Volunteer.

Meet Clive Phillips, MMN Patient and Foundation Volunteer.

MMN Awareness Month: Take the Ride for MMN

MMN Awareness Month: Take the Ride for MMN

NE Florida Virtual Meeting - the Value of Social Work

NE Florida Virtual Meeting - the Value of Social Work

2021 New Website Tutorial

2021 New Website Tutorial

MMN Ask the Expert with Dr. Tom Harbo and Brenda Perales

MMN Ask the Expert with Dr. Tom Harbo and Brenda Perales

Meet the GBS|CIDP Foundation International Team

Meet the GBS|CIDP Foundation International Team

Do You Have a Story to Tell? Learn how to write your story in less than 30 minutes.

Do You Have a Story to Tell? Learn how to write your story in less than 30 minutes.

2021 Virtual Summit Platform Tutorial

2021 Virtual Summit Platform Tutorial

DEE GAUSE RALEIGH PROMO FINAL 090921

DEE GAUSE RALEIGH PROMO FINAL 090921

DAVE AHRENS CHICAGO PROMO FINAL 090621 06 September 2021 06 46 34 PM

DAVE AHRENS CHICAGO PROMO FINAL 090621 06 September 2021 06 46 34 PM

CRYSTAL SADA PROMO FINAL 090721 07 September 2021 11 47 26 AM

CRYSTAL SADA PROMO FINAL 090721 07 September 2021 11 47 26 AM

KRISTEN MORGAN PITTSBURGH PROMO FINAL 090621 06 September 2021 06 54 53 PM

KRISTEN MORGAN PITTSBURGH PROMO FINAL 090621 06 September 2021 06 54 53 PM

MEGAN MCCULLOUGH HOUSTON PROMO 2021 FINAL 082721 27 August 2021 04 44 46 PM

MEGAN MCCULLOUGH HOUSTON PROMO 2021 FINAL 082721 27 August 2021 04 44 46 PM

Sterling Yoga

Sterling Yoga

2020 Virtual Summit Platform

2020 Virtual Summit Platform

Ask the Expert, Episode 12: Exploring Adaptive Devices

Ask the Expert, Episode 12: Exploring Adaptive Devices

Kedrion

Kedrion

2021 Virtual Walk & Roll Celebrations

2021 Virtual Walk & Roll Celebrations

No Impossible summits when dreams are shared: Bato's Guillain-Barre Syndrome Journey.

No Impossible summits when dreams are shared: Bato's Guillain-Barre Syndrome Journey.

Christopher Cross Fund

Christopher Cross Fund

Meet Guillain-Barre Syndrome survivor Barry Shore.

Meet Guillain-Barre Syndrome survivor Barry Shore.

Ask the Experts: How to Prepare for Planned Giving

Ask the Experts: How to Prepare for Planned Giving

Ask the Expert: Movement is Medicine

Ask the Expert: Movement is Medicine

COVID-19 Vaccines and the GBS|CIDP Community

COVID-19 Vaccines and the GBS|CIDP Community

Ask the expert

Ask the expert

GBS|CIDP Foundation International 40th Anniversary

GBS|CIDP Foundation International 40th Anniversary

Adhere Trial

Adhere Trial

Biomarkers Trial

Biomarkers Trial

UCB Trial

UCB Trial

2020 Giving Tuesday

2020 Giving Tuesday

GBS|CIDP Door-to-Door Fundraising Marathon, Portugal

GBS|CIDP Door-to-Door Fundraising Marathon, Portugal

Conway Virtual Meeting - Caring for the Caregivers

Conway Virtual Meeting - Caring for the Caregivers

Walk & Roll Clovis

Walk & Roll Clovis

2020 New Jersey Walk & Roll Virtual Walk & Roll

2020 New Jersey Walk & Roll Virtual Walk & Roll

2020 September Virtual Walk & Roll

2020 September Virtual Walk & Roll

2020 October Virtual Walk & Roll

2020 October Virtual Walk & Roll

Advocacy is Essential & Easy - Month of Action 2020

Advocacy is Essential & Easy - Month of Action 2020

Why Do We Advocate? - Month of Action 2020

Why Do We Advocate? - Month of Action 2020

How to Prep for An Advocacy Meeting, From those Who've Done It! - Month of Action 2020

How to Prep for An Advocacy Meeting, From those Who've Done It! - Month of Action 2020

Advocates Share Memories from their 1st Meeting- Month of Action 2020

Advocates Share Memories from their 1st Meeting- Month of Action 2020

October Month of Action - Advocate Training Part 3

October Month of Action - Advocate Training Part 3

October Month of Action - Advocate Training Part 2

October Month of Action - Advocate Training Part 2

October Month of Action - Advocate Training Part 1

October Month of Action - Advocate Training Part 1

Virtual Walk Sponsor, Takeda (1b)

Virtual Walk Sponsor, Takeda (1b)

Walk & Roll Sponsor, CSL Behring

Walk & Roll Sponsor, CSL Behring

Virtual Walk & Roll Sponsor, CSL CEO Welcome Video

Virtual Walk & Roll Sponsor, CSL CEO Welcome Video

Meet Jennifer Burgand, MMN (Multifocal Motor Neuropathy) Patient

Meet Jennifer Burgand, MMN (Multifocal Motor Neuropathy) Patient

2020 Virtual Walk & Roll for GBS|CIDP Research

2020 Virtual Walk & Roll for GBS|CIDP Research

Why Plasma Donation Matters to CIDP Patients

Why Plasma Donation Matters to CIDP Patients

The Clinical Research Process Explained with Dr. Lynn Rogers

The Clinical Research Process Explained with Dr. Lynn Rogers

GBS|CIDP Foundation International Raise Well Challenge

GBS|CIDP Foundation International Raise Well Challenge

Ask the Experts Episode 7 - Part 2, New Research & the Role of Plasma in the Covid-19 Response

Ask the Experts Episode 7 - Part 2, New Research & the Role of Plasma in the Covid-19 Response

New Research Collaboration & Role of Plasma in the COVID-19 Response

New Research Collaboration & Role of Plasma in the COVID-19 Response

GBS|CIDP Virtual Ask the Expert Chair Yoga and Mindful Meditation with Sterling Painton

GBS|CIDP Virtual Ask the Expert Chair Yoga and Mindful Meditation with Sterling Painton

Virtual "Ask the Expert" Topic 4 - Life After GBS|CIDP Diagnosis for Youth & Teens

Virtual "Ask the Expert" Topic 4 - Life After GBS|CIDP Diagnosis for Youth & Teens

Virtual "Ask the Expert" Topic 3 - Strengthening Your Immune System, Naturally with Dr. Julie Rowin

Virtual "Ask the Expert" Topic 3 - Strengthening Your Immune System, Naturally with Dr. Julie Rowin

Virtual Ask the Expert, Topic 2: COVID-19 and the GBS|CIDP Community

Virtual Ask the Expert, Topic 2: COVID-19 and the GBS|CIDP Community

Virtual Ask The Experts Advocacy Updates, Home Infusion, Insurance & Beyond

Virtual Ask The Experts Advocacy Updates, Home Infusion, Insurance & Beyond

Thankuary Video

Thankuary Video

Join Us for the November 16th Walk & Roll!

Join Us for the November 16th Walk & Roll!

Join Us for the November 16th Walk & Roll!

Join Us for the November 16th Walk & Roll!

Join Us for the November 16th Walk & Roll!

Join Us for the November 16th Walk & Roll!

Virtual Walk & Ride November 16th -- Join Us!

Virtual Walk & Ride November 16th -- Join Us!

Symposium 2020 Promotional Video

Symposium 2020 Promotional Video

Virtual Walk & Roll

Virtual Walk & Roll

Adrienn Hungarian Liaison

Adrienn Hungarian Liaison

Alejandra Pérez del Real CIDP Video

Alejandra Pérez del Real CIDP Video

Take Action for GBS|CIDP Awareness Month!

Take Action for GBS|CIDP Awareness Month!

May is GBS|CIDP Awareness Month

May is GBS|CIDP Awareness Month

Why Volunteer for the GBS|CIDP Foundation International?

Why Volunteer for the GBS|CIDP Foundation International?

Walk & Roll for GBS|CIDP RESEARCH!

Walk & Roll for GBS|CIDP RESEARCH!

Why are Patient Registries Important?

Why are Patient Registries Important?

Cheers to 30 Years of GBS|CIDP Foundation International Symposia!

Cheers to 30 Years of GBS|CIDP Foundation International Symposia!

Crystal's Wild Ride!

Crystal's Wild Ride!

Ways to Get Involved - Research & Advocacy

Ways to Get Involved - Research & Advocacy

Ways to Get Involved - Support & Education

Ways to Get Involved - Support & Education

Hala Ahmed - Kuwait/Egypt Liaison - GBS

Hala Ahmed - Kuwait/Egypt Liaison - GBS

Dr. Pieter Van Doorn - GBS|CIDP Research

Dr. Pieter Van Doorn - GBS|CIDP Research

Dr. Bart Jacobs - GBS|CIDP Research

Dr. Bart Jacobs - GBS|CIDP Research

Dr. Ruth Huizinga - GBS|CIDP Research

Dr. Ruth Huizinga - GBS|CIDP Research

Juan Antonio Lopez Valverde - Spain Liaison

Juan Antonio Lopez Valverde - Spain Liaison

Mia Van Daalen GBS & CIDP

Mia Van Daalen GBS & CIDP

Chen Rosenberg CIDP (Hebrew)

Chen Rosenberg CIDP (Hebrew)

Babafemi Sosanya GBS

Babafemi Sosanya GBS

Marion Oosthuysen- South African Liaison's GBS Story

Marion Oosthuysen- South African Liaison's GBS Story

Filip Rabaut CIDP

Filip Rabaut CIDP

James Babington Smith CIDP

James Babington Smith CIDP

GBS|CIDP 2018 Rare Disease Day Video (3)

GBS|CIDP 2018 Rare Disease Day Video (3)

Jean-Philippe Plançon - French Liaison

Jean-Philippe Plançon - French Liaison

Nancy DiSalvo - Italian Liaison

Nancy DiSalvo - Italian Liaison

GBS|CIDP Rare Disease Day Video (2)

GBS|CIDP Rare Disease Day Video (2)

GBS|CIDP 2018 Rare Disease Day Video

GBS|CIDP 2018 Rare Disease Day Video

Karani Kinyua - Kenyan Liaison

Karani Kinyua - Kenyan Liaison

2017 Washington, D.C. Walk & Roll

2017 Washington, D.C. Walk & Roll

Crystal's CIDP Story

Crystal's CIDP Story

GBS|CIDP Patient Video

GBS|CIDP Patient Video

Foot Care 101

Foot Care 101

Alternative Therapies

Alternative Therapies

The Power of Mindfulness

The Power of Mindfulness

Ask the Experts - CIDP Session

Ask the Experts - CIDP Session

Zika Update

Zika Update

Chair Aerobics

Chair Aerobics

Vaccinations

Vaccinations

Pain Management

Pain Management

2016 Symposium - Welcomes & Introductions

2016 Symposium - Welcomes & Introductions

Hugh Williams 'Why I Ran'

Hugh Williams 'Why I Ran'

Walk & Roll 2015

Walk & Roll 2015

Grifols - Plasma Donor to Patient

Grifols - Plasma Donor to Patient

Grifols - Plasma Donor to Patient (Spanish)

Grifols - Plasma Donor to Patient (Spanish)

Legislator of the Year - Congressman John Garamendi

Legislator of the Year - Congressman John Garamendi

Estelle Benson Volunteer Award

Estelle Benson Volunteer Award

GBS|CIDP Foundation 35th Anniversary

GBS|CIDP Foundation 35th Anniversary

Guillain-Barré Syndrome (GBS) 101

Guillain-Barré Syndrome (GBS) 101

GBS & CIDP Symposium 2014 - Orlando

GBS & CIDP Symposium 2014 - Orlando

What is Guillain-Barré Syndrome (GBS)?

What is Guillain-Barré Syndrome (GBS)?

GBS-CIDP Centers of Excellence

GBS-CIDP Centers of Excellence

Children with Guillain-Barré Syndrome

Children with Guillain-Barré Syndrome

Symptoms, diagnosis, and treatment of CIDP

Symptoms, diagnosis, and treatment of CIDP

What is Multifocal Motor Neuropathy (MMN)?

What is Multifocal Motor Neuropathy (MMN)?

CLIMBING TO RECOVERY - FRENCH

CLIMBING TO RECOVERY - FRENCH

Climbing to Recovery

Climbing to Recovery

Climbing to Recovery (Spanish)

Climbing to Recovery (Spanish)

What is CIDP English

What is CIDP English

What is CIDP French

What is CIDP French

What is CIDP (Spanish)

What is CIDP (Spanish)