Канал: Australian Pompe's Association

Renee living with Pompe disease.

Renee living with Pompe disease.

Catherine's journey with Pompe Disease.

Catherine's journey with Pompe Disease.

What is Pompe Disease?

What is Pompe Disease?

Pompe and Respiratory Infections

Pompe and Respiratory Infections

Pompe Australia Newborn Screening

Pompe Australia Newborn Screening

Newborn Screening Australia- Pompe Disease

Newborn Screening Australia- Pompe Disease

2021 Conference Dr Barry Byrne - Gene Therapy

2021 Conference Dr Barry Byrne - Gene Therapy

2021 Conference Psycological Support Dr Sue Hawkins

2021 Conference Psycological Support Dr Sue Hawkins

2021 Conference Conclusion for the day

2021 Conference Conclusion for the day

2021 Conference Patient story - Roly

2021 Conference Patient story - Roly

2021 Conference John Crowley

2021 Conference John Crowley

2021 Conference New Zealand Allyson & Sam

2021 Conference New Zealand Allyson & Sam

2021 Conference Reggie's Gift Program

2021 Conference Reggie's Gift Program

2021 Conference -Patient Support Program

2021 Conference -Patient Support Program

2021 Conference Meeting Address Sandeep Sanofi Genzyme

2021 Conference Meeting Address Sandeep Sanofi Genzyme

2021 Conference Agenda, Welcome & Introductions

2021 Conference Agenda, Welcome & Introductions

Mental Health Grief & Loss Ongoing Support

Mental Health Grief & Loss Ongoing Support

Mental Health Grief & Loss Coping

Mental Health Grief & Loss Coping

Mental Health Grief & Loss Self Care

Mental Health Grief & Loss Self Care

Metal Health Grief & Loss Things will get better

Metal Health Grief & Loss Things will get better

Mental Health Grief & Loss siblings age appropriate

Mental Health Grief & Loss siblings age appropriate

Mental Health Grief & Loss Advice for siblings

Mental Health Grief & Loss Advice for siblings

Mental Health Grief & Loss Relationships

Mental Health Grief & Loss Relationships

Losing a child to Pompe Grief & Loss -Guilt

Losing a child to Pompe Grief & Loss -Guilt

Pompe Disease Coping with Mental Fatigue

Pompe Disease Coping with Mental Fatigue

Pompe Disease- Mental Health Checklist

Pompe Disease- Mental Health Checklist

Pompe Disease- Next Steps to find support

Pompe Disease- Next Steps to find support

Pompe Disease- Grief

Pompe Disease- Grief

Coping with Pompe- Guilt

Coping with Pompe- Guilt

Pompe disease-Caring for our carers & partners

Pompe disease-Caring for our carers & partners

Pompe disease-Coping with pain and fatigue.

Pompe disease-Coping with pain and fatigue.

Pompe Diagnosis- What does this mean? What is next?

Pompe Diagnosis- What does this mean? What is next?

Pompe disease-Coping with Isolation and loneliness

Pompe disease-Coping with Isolation and loneliness

Processing the Pompe Diagnosis

Processing the Pompe Diagnosis

Coping with Pompe -The Diagnosis

Coping with Pompe -The Diagnosis

Care for Rare Nursing Services - Australia & New Zealand

Care for Rare Nursing Services - Australia & New Zealand

Pompe Psychological Support- Grief and Loss

Pompe Psychological Support- Grief and Loss

Pompe Psychological Support- Learning to Cope (full version)

Pompe Psychological Support- Learning to Cope (full version)

Pompe Disease Symptoms

Pompe Disease Symptoms

Australian Pompe Association - Campbell

Australian Pompe Association - Campbell

Australian Pompe Association - Nate's Story

Australian Pompe Association - Nate's Story

Australian Pompe New Born Screening

Australian Pompe New Born Screening

Australian Pompe Association - Thomas and Baylin

Australian Pompe Association - Thomas and Baylin

Australian Pompe Patient story - Paul Quinnell

Australian Pompe Patient story - Paul Quinnell