Канал: SRFCURE

The 2024 SRF Research Challenge, Featuring Dr. Ryan Flynn

The 2024 SRF Research Challenge, Featuring Dr. Ryan Flynn

SayScleroderma — Cynthia's Story

SayScleroderma — Cynthia's Story

Patient Forum: Lifehacks from the Scleroderma Community (2024)

Patient Forum: Lifehacks from the Scleroderma Community (2024)

Patient Forum: CAR T-Cell Therapy & Scleroderma – Today and Future (2024)

Patient Forum: CAR T-Cell Therapy & Scleroderma – Today and Future (2024)

Patient Forum: Scleroderma and Cancer: Implications for Cancer Screening & Therapy (2024)

Patient Forum: Scleroderma and Cancer: Implications for Cancer Screening & Therapy (2024)

Patient Forum: Stem Cell Transplant in Juvenile Scleroderma (2024)

Patient Forum: Stem Cell Transplant in Juvenile Scleroderma (2024)

Patient Forum: Platform Trials: Accelerating Clinical Research in Scleroderma (2024)

Patient Forum: Platform Trials: Accelerating Clinical Research in Scleroderma (2024)

Patient Forum: Heart Disease in Scleroderma (2024)

Patient Forum: Heart Disease in Scleroderma (2024)

Patient Forum: Non-Pharmacologic Management of Scleroderma (2024)

Patient Forum: Non-Pharmacologic Management of Scleroderma (2024)

Scleroderma Awareness Month — Andrew's Story

Scleroderma Awareness Month — Andrew's Story

Dee's Journey with Scleroderma and PAH

Dee's Journey with Scleroderma and PAH

Dr. Chang Talks Making an Impact through Research

Dr. Chang Talks Making an Impact through Research

Join Us for CCHC 2023, a Tribute to Bob Saget

Join Us for CCHC 2023, a Tribute to Bob Saget

"Angel Applicant"—An Excerpt from a New Scleroderma Documentary

"Angel Applicant"—An Excerpt from a New Scleroderma Documentary

Developing personalized medicine strategies in scleroderma

Developing personalized medicine strategies in scleroderma

Understanding Scleroderma Vascular Biology

Understanding Scleroderma Vascular Biology

How to Advocate for Yourself: Making the most of your doctor's visits

How to Advocate for Yourself: Making the most of your doctor's visits

Welcome & Scleroderma 101: Understanding diagnosis and treatment

Welcome & Scleroderma 101: Understanding diagnosis and treatment

Essentials of Clinical Trials: A Patient’s Guide

Essentials of Clinical Trials: A Patient’s Guide

Cure Crew Advocate Spotlight: Greg Cohen

Cure Crew Advocate Spotlight: Greg Cohen

CONQUEST, a Platform Clinical Trial

CONQUEST, a Platform Clinical Trial

Juvenile Onset Systemic Scleroderma: What is it and How is it Evaluated and Treated

Juvenile Onset Systemic Scleroderma: What is it and How is it Evaluated and Treated

Kim Spreads Raynaud's Awareness

Kim Spreads Raynaud's Awareness

Behind the Mystery, featuring the Scleroderma Research Foundation

Behind the Mystery, featuring the Scleroderma Research Foundation

Dr. Whitfield on the Bright Horizon of Scleroderma Research

Dr. Whitfield on the Bright Horizon of Scleroderma Research

Bob Saget Shares How Scleroderma Affected His Sister

Bob Saget Shares How Scleroderma Affected His Sister

Dr. Torok Shares How You Can Help Advance Scleroderma Research

Dr. Torok Shares How You Can Help Advance Scleroderma Research

Dr. Zamanian talks PH & exercise

Dr. Zamanian talks PH & exercise

Webinar: Understanding Pulmonary Arterial Hypertension (PAH), with Dr. Roham Zamanian (2022)

Webinar: Understanding Pulmonary Arterial Hypertension (PAH), with Dr. Roham Zamanian (2022)

Pulmonary hypertension + scleroderma

Pulmonary hypertension + scleroderma

We Are on a Mission

We Are on a Mission

A Tribute to Bob Saget: Laughter and Scleroderma

A Tribute to Bob Saget: Laughter and Scleroderma

2022 SRF Research Challenge: The Scleroderma Twins Study with Dr. Howard Chang

2022 SRF Research Challenge: The Scleroderma Twins Study with Dr. Howard Chang

Patient Forum: Genomics Sessions (2022)

Patient Forum: Genomics Sessions (2022)

Patient Forum: Fibrotic Lung Disease in Systemic Sclerosis (2022)

Patient Forum: Fibrotic Lung Disease in Systemic Sclerosis (2022)

Patient Forum: Closing Remarks (2022)

Patient Forum: Closing Remarks (2022)

Patient Forum: Advances in Pulmonary Arterial Hypertension (PAH) Research (2022)

Patient Forum: Advances in Pulmonary Arterial Hypertension (PAH) Research (2022)

Patient Forum: The CONQUER Registry (2022)

Patient Forum: The CONQUER Registry (2022)

Patient Forum: Collaborating to Make a Difference - Cure Crew (2022)

Patient Forum: Collaborating to Make a Difference - Cure Crew (2022)

Patient Forum: GI Involvement in Systemic Sclerosis (2022)

Patient Forum: GI Involvement in Systemic Sclerosis (2022)

Patient Forum: What You Need to Know About Systemic Sclerosis & Research (2022)

Patient Forum: What You Need to Know About Systemic Sclerosis & Research (2022)

Patient Forum: Opening Remarks (2022)

Patient Forum: Opening Remarks (2022)

Patient Forum: Intermission (2022)

Patient Forum: Intermission (2022)

Webinar: Gastrointestinal Involvement in Systemic Sclerosis, with Dr. Zsuzsanna McMahan (2022)

Webinar: Gastrointestinal Involvement in Systemic Sclerosis, with Dr. Zsuzsanna McMahan (2022)

Why Dr. McMahan is Excited About Research

Why Dr. McMahan is Excited About Research

Dr. Chang Drives Medical Discoveries

Dr. Chang Drives Medical Discoveries

Lovette Participates in Research

Lovette Participates in Research

What Is the CONQUER Registry?

What Is the CONQUER Registry?

Sophie Anne Inspires Hope

Sophie Anne Inspires Hope

Finding a Cure

Finding a Cure

For Hope (Full Film, 1996)

For Hope (Full Film, 1996)

Why Sharon Monsky Founded the SRF

Why Sharon Monsky Founded the SRF

CCHC 2021: Registration is open, and you're invited!

CCHC 2021: Registration is open, and you're invited!

Bob Saget & Susan Feniger Want You to Join for Cool Comedy • Hot Cuisine!

Bob Saget & Susan Feniger Want You to Join for Cool Comedy • Hot Cuisine!

Bob Saget Invites You to Cool Comedy • Hot Cuisine 2021!

Bob Saget Invites You to Cool Comedy • Hot Cuisine 2021!

Join Us for Cool Comedy • Hot Cuisine 2021

Join Us for Cool Comedy • Hot Cuisine 2021

Webinar: Explaining CONQUER, with Dr. Tracy Frech and Dr. Shervin Assassi (2021)

Webinar: Explaining CONQUER, with Dr. Tracy Frech and Dr. Shervin Assassi (2021)

Making Avocado Toast with Susan Feniger for Cool Comedy • Hot Cuisine 2020

Making Avocado Toast with Susan Feniger for Cool Comedy • Hot Cuisine 2020

Cool Comedy • Hot Cuisine Goes VIRTUAL!

Cool Comedy • Hot Cuisine Goes VIRTUAL!

Webinar: Balancing Your Immune System and Nutrition, with Dr. Elizabeth Volkmann (2020)

Webinar: Balancing Your Immune System and Nutrition, with Dr. Elizabeth Volkmann (2020)

Webinar: Take Care of Yourself at Home - Hand and Face Mobility, with Dr. Janet Poole (2020)

Webinar: Take Care of Yourself at Home - Hand and Face Mobility, with Dr. Janet Poole (2020)

Webinar: Staying Well during Covid-19, with Dr. Tracy Frech (2020)

Webinar: Staying Well during Covid-19, with Dr. Tracy Frech (2020)

Save the Date for Cool Comedy • Hot Cuisine New York 2018!

Save the Date for Cool Comedy • Hot Cuisine New York 2018!

Your Voice, Your Cure

Your Voice, Your Cure

A Collaborative Project: Genome Research in African American Scleroderma Patients (GRASP)

A Collaborative Project: Genome Research in African American Scleroderma Patients (GRASP)

The SRF 2018 Spring Research Challenge

The SRF 2018 Spring Research Challenge

Celebrating Over 30 Years of Cool Comedy • Hot Cuisine

Celebrating Over 30 Years of Cool Comedy • Hot Cuisine

Webinar: Skeletal Myopathy in Systemic Sclerosis, with Dr. Julie Paik (2017)

Webinar: Skeletal Myopathy in Systemic Sclerosis, with Dr. Julie Paik (2017)

Webinar: Update on Scleroderma Pulmonary Hypertension, with Dr. Yon K. Sung (2015)

Webinar: Update on Scleroderma Pulmonary Hypertension, with Dr. Yon K. Sung (2015)

Webinar: Q&A from Update on Scleroderma Pulmonary Hypertension, with Dr. Yon K. Sung (2015)

Webinar: Q&A from Update on Scleroderma Pulmonary Hypertension, with Dr. Yon K. Sung (2015)

Webinar: A Patient's Conversation About Scleroderma, with Dr. Susan Nyanzi and Dr. Luke Evnin (2015)

Webinar: A Patient's Conversation About Scleroderma, with Dr. Susan Nyanzi and Dr. Luke Evnin (2015)

Webinar: Improving Function of Hands and Face, with Dr. Janet Poole (2017)

Webinar: Improving Function of Hands and Face, with Dr. Janet Poole (2017)

Webinar: How to Manage Scleroderma with Lifestyle, with Dr. Susan Nyanzi (2017)

Webinar: How to Manage Scleroderma with Lifestyle, with Dr. Susan Nyanzi (2017)

Webinar: Consider the Possibilities of Clinical Trials, with Dinora Dominguez, RN (2017)

Webinar: Consider the Possibilities of Clinical Trials, with Dinora Dominguez, RN (2017)

Webinar: Update on Hand Surgery for Systemic Sclerosis, with Dr. James Chang (2017)

Webinar: Update on Hand Surgery for Systemic Sclerosis, with Dr. James Chang (2017)

Webinar: Understanding the GI Microbiome in Scleroderma, with Dr. Elizabeth Volkmann (2017)

Webinar: Understanding the GI Microbiome in Scleroderma, with Dr. Elizabeth Volkmann (2017)

Celebrating the 30th Anniversary of the SRF

Celebrating the 30th Anniversary of the SRF

2017: A Tribute to Bob Saget and His Work on Cool Comedy • Hot Cuisine

2017: A Tribute to Bob Saget and His Work on Cool Comedy • Hot Cuisine

The SRF Research Program

The SRF Research Program

All about the Genome Research in African-American Scleroderma Patients (GRASP) Study

All about the Genome Research in African-American Scleroderma Patients (GRASP) Study

Webinar: Treating Scleroderma Interstitial Lung Disease (ILD), with Dr. Elizabeth Volkmann

Webinar: Treating Scleroderma Interstitial Lung Disease (ILD), with Dr. Elizabeth Volkmann

Dr. Howard Chang, MD, Ph.D. on Scleroderma Research, Progress and the SRF

Dr. Howard Chang, MD, Ph.D. on Scleroderma Research, Progress and the SRF

Webinar: Emerging Therapies for Pulmonary Fibrosis, with Dr. Paul Wolters (2015)

Webinar: Emerging Therapies for Pulmonary Fibrosis, with Dr. Paul Wolters (2015)

Webinar: Diagnosis and Early Management of Scleroderma, with Dr. Francisco Boin (2015)

Webinar: Diagnosis and Early Management of Scleroderma, with Dr. Francisco Boin (2015)

Webinar: Skin Manifestations of Scleroderma, with Dr. Lorinda Chung (2014)

Webinar: Skin Manifestations of Scleroderma, with Dr. Lorinda Chung (2014)

Dr. Hal Dietz on Medical Research and the SRF

Dr. Hal Dietz on Medical Research and the SRF

Dr. Antony Rosen on the SRF Research Program

Dr. Antony Rosen on the SRF Research Program

Webinar: Scleroderma in the Kidney, with Dr. Christopher Denton (2014)

Webinar: Scleroderma in the Kidney, with Dr. Christopher Denton (2014)

Webinar: GI Complications and Treatments in Scleroderma, with Dr. Pankaj “Jay” Pasricha (2013)

Webinar: GI Complications and Treatments in Scleroderma, with Dr. Pankaj “Jay” Pasricha (2013)

Webinar: What's New in the World of Scleroderma, with Dr. Laura Hummers (2013)

Webinar: What's New in the World of Scleroderma, with Dr. Laura Hummers (2013)

Webinar: Systemic Sclerosis, a Treatable Multi-System Disease, with Dr. Monique Hinchcliff (2012)

Webinar: Systemic Sclerosis, a Treatable Multi-System Disease, with Dr. Monique Hinchcliff (2012)

Webinar: New Directions for Scleroderma Treatments, with Dr. Andrew Tager (2013)

Webinar: New Directions for Scleroderma Treatments, with Dr. Andrew Tager (2013)

Webinar: Pulmonary Hypertension as a Complication of Scleroderma, with Dr. Roham Zamanian (2013)

Webinar: Pulmonary Hypertension as a Complication of Scleroderma, with Dr. Roham Zamanian (2013)

Webinar: A Conversation with Bob Saget and Luke Evnin, PhD, about Scleroderma (2012)

Webinar: A Conversation with Bob Saget and Luke Evnin, PhD, about Scleroderma (2012)

Project Scleroderma: Beneath the Surface

Project Scleroderma: Beneath the Surface

Webinar: Grief to Hope, from Loss to Healing, with Megan Liddicoat, RN BSN (2012)

Webinar: Grief to Hope, from Loss to Healing, with Megan Liddicoat, RN BSN (2012)

Webinar: Scleroderma, a Vascular Disease, with Dr. Fredrick Wigley (2012)

Webinar: Scleroderma, a Vascular Disease, with Dr. Fredrick Wigley (2012)

Webinar: Accelerating Scleroderma Research Toward a Cure, with Dr. John Varga (2012)

Webinar: Accelerating Scleroderma Research Toward a Cure, with Dr. John Varga (2012)

Webinar: Progress and Promise in Scleroderma Clinical Research, with Dr. James R. Seibold (2012)

Webinar: Progress and Promise in Scleroderma Clinical Research, with Dr. James R. Seibold (2012)

Webinar: Understanding Scleroderma Research, with Dr. Antonios Aliprantis (2012)

Webinar: Understanding Scleroderma Research, with Dr. Antonios Aliprantis (2012)

Changing Lives (2005)

Changing Lives (2005)

Moving Forward

Moving Forward

CNN Heroes: Dana Delany joins the fight against hard skin illness (2010)

CNN Heroes: Dana Delany joins the fight against hard skin illness (2010)