Канал: RARE-X

RARE-X Information Session April 2023

RARE-X Information Session April 2023

RARE-X General Information Session - Recorded March 2023

RARE-X General Information Session - Recorded March 2023

How to upload Genetic Reports on RARE-X (One Minute)

How to upload Genetic Reports on RARE-X (One Minute)

How to upload Genetic Reports on RARE-X

How to upload Genetic Reports on RARE-X

RARE-X Lunch & Learn - "How To Tell Your Story Through Data"

RARE-X Lunch & Learn - "How To Tell Your Story Through Data"

Dr. Wendy Chung explains the importance of uploading genetic reports on RARE-X

Dr. Wendy Chung explains the importance of uploading genetic reports on RARE-X

What is the Xcelerate RARE Open Science Data Challenge

What is the Xcelerate RARE Open Science Data Challenge

RARE-X General Information Session - Recorded 11-15-22

RARE-X General Information Session - Recorded 11-15-22

RARE X GDPR Overview

RARE X GDPR Overview

RARE-X October Science & Research Update

RARE-X October Science & Research Update

RARE-X Exchange - Collaborative Research Network Commission for Complex Copy Number Variants

RARE-X Exchange - Collaborative Research Network Commission for Complex Copy Number Variants

RARE-X Exchange - Built to Accelerate - disease characterization, progression models, road mapping

RARE-X Exchange - Built to Accelerate - disease characterization, progression models, road mapping

RARE-X Exchange - RARE-X - Leveraging What’s ahead - RARE-X CEO Charlene Son Rigby

RARE-X Exchange - RARE-X - Leveraging What’s ahead - RARE-X CEO Charlene Son Rigby

RARE-X Exchange - Open Science Data Challenge - Neuro + Case Study: ALS Kaggle Challenge

RARE-X Exchange - Open Science Data Challenge - Neuro + Case Study: ALS Kaggle Challenge

RARE-X Exchange - The Future is Now: Realizing the Possibilities of Patient Driven Research

RARE-X Exchange - The Future is Now: Realizing the Possibilities of Patient Driven Research

RARE-X Exchange - N-of-1 Therapies - The Promise and Opportunity

RARE-X Exchange - N-of-1 Therapies - The Promise and Opportunity

RARE-X Exchange Panel - Can Big Data Supercharge Research for 10K Rare Diseases?

RARE-X Exchange Panel - Can Big Data Supercharge Research for 10K Rare Diseases?

RARE-X Exchange - Opening Keynote: When Rare Disease Becomes a BIG Data Opportunity

RARE-X Exchange - Opening Keynote: When Rare Disease Becomes a BIG Data Opportunity

2022 Exchange Wrap Up

2022 Exchange Wrap Up

RARE-X Science & Research Roundup - Aug2022

RARE-X Science & Research Roundup - Aug2022

Privacy and Security for Patient Data Collection

Privacy and Security for Patient Data Collection

Why participate in data collection?

Why participate in data collection?

Data Standards and RARE-X

Data Standards and RARE-X

RARE X wishes everyone a Happy New Year!

RARE X wishes everyone a Happy New Year!

What is Data Governance? A RARE-X Definition Series Video

What is Data Governance? A RARE-X Definition Series Video

Megan O'Boyle - ORPHAN DRUGS & RARE DISEASES 2020 - 11-19-20

Megan O'Boyle - ORPHAN DRUGS & RARE DISEASES 2020 - 11-19-20

RARE-X Definition Series: Real World Data and Real World Evidence

RARE-X Definition Series: Real World Data and Real World Evidence

What are the next steps for RARE-X? What can you do today?

What are the next steps for RARE-X? What can you do today?

What is RARE-X building? Where is RARE-X today?

What is RARE-X building? Where is RARE-X today?

Why is RARE-X so important?

Why is RARE-X so important?

What is RARE-X? An Introduction.

What is RARE-X? An Introduction.

RARE-X - Federated Data for Patients and Researchers

RARE-X - Federated Data for Patients and Researchers

Introduction to RARE-X

Introduction to RARE-X