Title: Disease Management: Rare Diseases and Understanding the Implications of Genetic Testing
Moderator: Catherine Campbell, AAKP Ambassador, current ESRD patient, seeking a living donor transplant
Speakers:
Richard Nelson, Founder and Chair, Rare Kidney Disease Foundation
Anna Greka, MD, PhD; Institute Member, Director of the Kidney Disease Initiative, Broad Institute of MIT
As the oldest and largest, independent kidney patient organization in the U.S. – AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities. AAKP fights for early disease detection and the appropriate diagnosis of rare/genetic conditions; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; promotion of research and innovation including artificial implantable and wearable kidneys; and the elimination of barriers for patient access to available treatment options. Learn more at www.aakp.org.
