How many times do we want to speak up for ourselves during a doctor’s visit? How about with family and friends who are helping with our care at home?
5 cancer survivors come together to talk about every way they advocated for themselves, including how to get better treatment, get through side effects, and get mental and emotional support.
Special thanks to Seagen for its support of our patient program
Full story & transcript → [ Ссылка ]
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The interview has only been edited for clarity.
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Contents of this video:
00:00 - Intro
06:35 - Speaking up for cultural sensitivity (and just listen!)
10:51 - Self-advocacy through research
15:41 - What got you to speak up about the research you'd found?
16:53 - Speaking up because we know our bodies best
19:10 - Speaking up for our independence
21:17 - Speaking up for setting boundaries with our closest supporters
22:52 - Speaking up against managing other people's feelings
24:52 - Speaking up to "reclaim" independence
37:13 - Speaking up for support
39:07 - Speaking up...because people want to help!
40:00 - Speaking up during the pandemic
45:25 - Speaking up for mental health
52:03 - Speaking up for family planning options
01:01:28 - Speaking up about survivorship
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#HodgkinLymphoma #cancersurvivor #cancerstories #cancerpatient #patientstories #thepatientstory #speakingupforourselves #roundtable #self-advocacy #survivorship #lymsm
