Jake Pickles was born with hypoplastic left heart syndrome (HLHS), a congenital heart defect that causes some parts of the left heart to be underdeveloped. As an infant and toddler, Jake had three open-heart surgeries at Boston Children's Hospital to repair his heart. Now 22, and one of the oldest patients to survive with HLHS, Jake shares his fears and dreams for the future.

This video is part of the Heart Experience Journal: [ Ссылка ]

This journal is a collection of stories, videos, and personal experiences from patients and families about what it’s like to have a pediatric heart condition. It represents the “collective wisdom” of 30 families and many health care providers from the Boston Children’s Hospital Heart Center.

Originally created in 2000, the Experience Journal was updated in 2017. This project was created by the Boston Children’s Hospital Department of Psychiatry and Heart Center.

All contributions were reviewed for safety and appropriateness by a group of Heart Center parents and health care providers.

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