"There is no planning." [ Ссылка ]
Parents of a medically complex son with multiple progressive disorders, who is now age 18, talk about the challenge of not knowing how it's going to go, how long it's going to last, and the frustration of not being able to plan. Everything is put on hold until his life ends. If your child has Mitochondrial disease or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.
