A lot of you have been asking how we have been since Lebone's diagnosis. We appreciate all the prayers and love.
The road after diagnosis was a lonely one for us. It is our hope that no-one feels as lost as we did.
Below are some of the contacts we made use of after diagnosis.
Genetic Counsellor: Monica Araujo - monica.araujo@nhls.ac.za
Paediatrician: Dr Bopape - +27662511559
Cardiologist: Dr Hopewell - +27101330631
All Speaks (Organisation) - www.abelspeaks.org
Paeds Pal (Paediatric Palliative Care) - +27212005873
Neuro Physiotherapist: Sam Rosie - +27828272260
Speech Therapist: Andrea Fourie - +27723686501
#trisomy18 #edwardssyndrome #themakhs
