Neuromuscular disease is a heterogenous group of disorders that causes muscle weakness or dysfunction. Because muscle weakness profoundly affects pulmonary function and pulmonary care is complex, it is essential that a dedicated pulmonary team takes care of patients with neuromuscular disease.

In this video, our Inpatient Medical Director of the Breathing Institute Oren Kupfer, MD, discusses the various components of pulmonary care that the Neuromuscular Clinic at Children’s Hospital Colorado provides to kids and young adults with neuromuscular weakness. Dr. Kupfer reviews the goals of pulmonary care, which include reducing work of breathing, improving sleep quality, reducing illness and hospitalization, facilitating care at home, having a plan and being prepared. He also shares the medical approach that makes the Neuromuscular Clinic unique, such as interdisciplinary care, programmatic care and hospital-wide partnerships.

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