When I made my floor desk video ([ Ссылка ]), I still thought the problem was my spine bc that’s all doctors ever wanted to check, until I pestered them about my obviously enlarged ovary and other clues pointing towards endometriosis. Spoiler: back pain does not always come from your back.

Can I get paid for all the work I did this year holding my doctors’ hands to figure this out? 🙄

Additional captions in video: Illness update (not just my spine)// (osteoarthritis/scoliosis/bulging discs)// i also have ulcerative colitis which complicates things // even had to go through it with oncology bc my rectal lymph nodes are slightly enlarged and i have a lesion in my colon// Finally got doctors to give me pain meds to keep me out of the ER every menstruation// back pain isn't always actually the back! 🤷

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End screen: Ambler, Theme for Harold - incompetechz
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I am Safe 💜 Affirmations for personal freedom, self-compassion, and positive growth [ Ссылка ]


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→ My goal is to create a platform for awareness, visibility, and guidance for topics like chronic illness, disability, queerness, PTSD and surviving abuse. I also do vlogs, Let's Plays, J-Pop translations, and more!

I live with ulcerative colitis, narcolepsy, fibromyalgia, myalgic encephalomyelitis, osteoarthritis, bulging discs, atlas subluxation, degenerative disc disease, ovarian cysts, suspected endometriosis (with possible unconfirmed adenomyosis or hyperplasia) and other comorbid neurological and auto-immune diseases. I've been suspected for MS since 2019 and am now seeing oncology for enlarged mesorectal lymph nodes and a thickened rectal wall. I'm in the process of coordinating pelvic surgery. I'm also neurodivergent and an abuse survivor with C-PTSD and treatment-resistant depression. Even with these challenges, I work as much as I can at various jobs and my free time is used to work on content.

​Your donations and patronage allow me to afford what I need to care for my body while still being able to follow my passions. Thank you so much for supporting my dreams.​


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♫ Music from incompetech, Danosongs, YouTube, Rewind Remix, Bensound, Free BG Music
✏ thumbnail decorated in LINE camera, PS, end screen art by cherrycrush

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