Jack and his parents live on the east coast of England. Every now and then they come to London, trying to make the most of their day out. But the reason for their regular visits beats inside Jack's little chest.

"We found out about that condition when I was about 28 weeks pregnant - they told us unfortunately that's hypoplastic left heart syndrome, and it was very complex, and said it would involve a three-stage palliative surgery. So it was quite a shock," says Jack's mother Sarah.

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