Natalie Ledesma, a seasoned registered dietitian nutritionist with over 20 years of experience, addresses FOP-related nutrition issues and some helpful ways to manage challenges including, for example, limited jaw mobility and decreased appetite.
💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: [ Ссылка ]
🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: [ Ссылка ]
👋🏽 CONNECT:
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📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: [ Ссылка ]
👨👩👧👦 Register for the next Family Gathering: [ Ссылка ]. Relive sessions from past Gatherings: [ Ссылка ]
🛠️ Check out the Ability Toolbox Guidebook featuring tools and home adaptations for independent living: [ Ссылка ]
📆 Get involved with our family services, fundraising and awareness events: [ Ссылка ]
📗 Learn the scientific terminology surrounding FOP in the IFOPA Glossary: [ Ссылка ]
❤️ DONATE and join us to fight FOP and support families in their journey: [ Ссылка ]
🙋🏽 FOP Frequently Asked Questions: [ Ссылка ]
#cureFOP #RareDisease #disability #RAREParenting #caregiver
