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EMILY Green, 22, was born with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome, which means she was born without a fully formed vagina. She explained to Truly: “One in five thousand women are born with it, it means I was born without a uterus and a fully formed vagina. I’ve got both ovaries, which hopefully are healthy, but I won’t be able to find that out for a few years yet.” Her mental health was also negatively affected by the diagnosis: “I was just humiliated and embarrassed by it.” Adding that: “I didn’t want people to judge me, I didn’t feel like a woman.” She was diagnosed at 16 years old and started on the treatment of dilation, but medical staff realised after a year that it wasn’t working as well as they’d hoped. So Emily decided to undergo surgery, which she described as “excruciating and really horrible.” Emily regularly blogs about her experience and has now found acceptance with other members of the MRKH community, where she can discuss the impact of the condition. “It's part of who I am, it is my story, I don't want to pretend that it’s not me, it is me.”

Follow Emily here:
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Videographer: Nick Harmer
Producers: Kate Moore and Kim Nguyen
Editor: Sarah-Jayne Galpin

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