What is Levodopa Phobia? For some people with Parkinson's (PWP) it is common and "consequential." I am not a doctor and approach this subject as someone with PD. But when I was diagnosed I encountered the myths I discuss in the video. These myths are still pervasive and it's essential they are understood and debunked.

This was the most challenging video of mine to make because this topic is so important! What medicines we decide are best for us is a personal decision. But having accurate information when making these decisions is essential. It's my ultimate hope to spread the word about Levodopa phobia and inspire people to have their own conversations with their doctors, families, friends, and do their own research.


Resources:

"Levodopa Phobia a review of a not uncommon and consequential phenomenon."
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Ask The MD: Myths About Levodopa

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"With long-term use of levodopa (as well as longer duration of Parkinson's disease), complications may develop. These can include dyskinesia or "off" time. Dyskinesia is uncontrolled, involuntary writhing or wriggling movement. It most often occurs when symptoms are otherwise well controlled (known as "on" times). "Off" time is when symptoms return before your next medication dose is scheduled. It can come on gradually or suddenly and unpredictably and can alternate with "on" time throughout the day."

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"MYTH #2: Levodopa loses effectiveness over time
FACTS: It is true that over time, people with PD tend to need to take more levodopa. As the progression of PD takes place, there are fewer dopaminergic neurons in the brain that can produce their own dopamine. A person with PD tends to need more medication containing dopamine to compensate for these changes. Therefore, a higher dosage of levodopa over time does not mean that the medication is no longer working; it means that the disease is changing."

The article below I cite as an example of bad information we inevitably will come across online. This statement is infuriating! "In general, dopamine's potency will wear off after three years."

The danger is when some truth are mixed with untruths.

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