ALS Focus is a new survey platform for people with ALS and caregivers to communicate their needs, preferences, and experiences as they meet the everyday challenges of ALS. It helps amplify the voice of people affected by ALS to inform research, clinical, regulatory, and drug company decisions and more to ultimately improve quality of life. All data collected will be open and free to the entire ALS community. Learn more and how to participate!
Ещё видео!