Marking LGMD Awareness Day (30 September), we were joined in our LGMD seminar by Professor Volker Straub and Dr Yalda Jamshidi to talk about the latest LGMD research. They talked about the various types of limb girdle muscular dystrophy, getting a precise diagnosis as well as the prevalence of clinical trials and how to get involved.
This was followed by a panel discussion on living with and managing your condition with Dr Fiona Norwood (Consultant), Jo Reffin (Physiotherapist) and Andrew Robertson (MDUK volunteer who has LGMD).
The headline sponsor for the MDUK Muscles Matter 2020 online seminar series is PTC Therapeutics [ Ссылка ], with additional sponsorship from Sarepta Therapeutics [ Ссылка ].
