"I always want parents to know they have a choice." [ Ссылка ]
A pediatric palliative care nurse shares how the team typically knows a lot about the pros and cons of medical interventions and also how the diseases typically progress, which allows them to be proactive with the family while also reminding the parents that they truly have choices. It’s not about the child NEEDING this or NEEDING that. “There are risks and benefits to everything that we bring.”
(The mom of two sons with mitochondrial disease and their pediatric palliative care nurse talk about how they work together to get her sons comfortable.) If your child has mitochondrial disease or another pediatric life threatening illness, this mom and palliative care nurse share their guidance to help you find your way. Visit www.courageousparentsnetwork.org to see more videos.
