Speaker: Sarah Parvanta
Member Organization: The ALS Association
ALS Focus is a patient- and caregiver-led survey program in the United States that measures the needs, preferences, and experiences of people with ALS and their caregivers across the disease. Given the critical role that caregivers play, ALS Focus invited a large sample of current and past ALS caregivers to participate in a Caregiver Needs survey. Results show which programs and tools are most important to ALS caregivers, their top concerns, and quality of life.
