We were joined in our myotonic dystrophy seminar with updates on the latest research from Judith Sleeman and Dr. Chris Turner. We also heard about the Myotonic Dystrophy patient registry from its Project Manager and Curator, Ben Porter.
Following on from discussing progress in research, we were joined by specialist nurse Susan Macdonald, physiotherapist Charlotte Massey and Speech and Language Therapist Jodi Allen to discuss ways of managing myotonic dystrophy.
Part of the MDUK Muscles Matter 2021 series: [ Ссылка ]
