Do you ever wonder what it would be like to not see your children's faces as they grow older? In this video, I open up about one of the biggest fears I have as a patient gradually losing vision to myopic macular degeneration (MMD). Check out the longform video related to this Short for more insight about my MMD struggles. Don't forget to subscribe for more insightful content on #maculardegeneration!

MMD is a sight-threatening condition resulting from high or pathological myopia. It is sometimes called degenerative myopia It is the second most common cause of blindness in the developed world, after age-related macular degeneration (AMD). Patients are typically diagnosed between the ages of 20 to 50, directly affecting their ability to contribute to society.

It is all too often considered a rare disease and is therefore woefully under-researched and often under-diagnosed. Its incidence is nonetheless rapidly increasing around the world, with an estimated 40 million people currently suffering from it, a figure that is predicted to rise to 100 million within the next 25 years.

Patients are often mis- or partially diagnosed, left—as I was—to fill the gaps online at the risk of finding inaccurate or misleading information.

There needs to be a drastic change in how patients with MMD are diagnosed and treated. And needless to say, there needs to be active research for a cure. I hope to raise awareness about this by sharing my story.

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