In this clip, I share the story of lauren who has Harlequin Ichthyosis (HI). You won't believe how good she looks now. HI is a rare skin condition that affects 1 in 300,000 babies. Most do not make it past the age of 1 week, but there are cases of children making it to adulthood. Lauren is such a case and her story is beautiful.
Check it out
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I have seen babies with this and it can be devastating. I want to bring awareness to this rare and often fatal disease. I pray a baby you care for never presents with this, but if so, with this clip, you can know what it is and where to seek help. The first image is not the Ms. Lauren, but showing it as an example of this disease.
See below for resources.
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Resources:
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#fyp #ichthyosis #skincondition #newborn #raredisease #baby
