Epidermolysis Bullosa, or EB, is a rare genetic skin disorder the the majority of people have never heard of, yet it affects 100,000 children across the United States. Children born with this disease lack the ability to produce the collagen-7 protein that acts as a glue to bind the inner and out layers of skin together.
This video is about Garrett and the disease he was born with, Epidermolysis Bullosa or, EB. This video is very unique compared to images you might normally see regarding EB, in that it gives the public an intimate, true to life view of what living day-to-day is like with a rare debilitating skin disease.
Part 2 of this video can be viewed here: [ Ссылка ]
Join others from around the world who are managing EB on the international online community on RareConnect: [ Ссылка ]
