Jen is a mother of a two-year-old boy named Koa diagnosed with Klinefelter syndrome/XXY in utero. After a traumatic diagnosis, Jen and her husband Greg have opened up about Koa's extra X.
Klinefelter syndrome, also known as XXY, is men's most common chromosome condition. It affects 1-650 males stated by the NIH, though we believe this condition affects many more. Men and boys diagnosed with XXY are "hiding in plain sight" as the diagnosis shows no physical traits visual to the public eye. One of the most common physical traits is small testicles.
75% of men die never receiving a diagnosis, and over 70% of babies diagnosed in utero are terminated due to 80 years of misinformation and flawed research. Our community must stand up against the stigmas to create change so we can be less misunderstood and get the medical help we desperately need. Please help our nonprofit by donating. www.livingwithxxy.org
Klinefelter Syndrome: Our Commitment To Our Sons
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