Opening Remarks Alyssa O’Driscoll, Executive Director, Sarcoma Alliance

0:00:00 - Surgical Treatment and Quality of Life - William Tseng, MD, University of Southern California, Keck School of Medicine
0:32:30 - Surgical Treatment Q&A:
- Is "Staging laparoscopy with exploratory laparotomy" different from "Open Surgery"? If yes, how?
- Sometimes therapy is performed since surgery is not an option in retroperitoneal liposarcoma. Is it possible to treat in its entirety with therapy? Have you seen cases where chemotherapy-treated sarcoma and no surgery was required later?
- Does sometimes surgery increase the chance of spread of tumors, especially for localized sarcoma? Or is it more related to the genetics of the disease?

0:40:37 - Palliative Care - Steven Oppenheim, MD, FAAHPM, Cedars-Sinai Health System
0:56:09 - Palliative Care Q&A:
- Are exercise, yoga, acupuncture, alternate therapies including naturopathic support offered as part of palliative care?
- Is palliative care covered by insurance?
- How long can a person be under palliative care?
- Are there onco-centric versions of psychiatrists, therapists, etc.? Does it make a difference?
- How can nurses help introduce the notion of palliative care to their patients as they spend a lot of time with them during their treatments?

1:09:30 - Radiation - Behrooz Hakimian, MD, Cedars-Sinai Health System
1:35:20 - Radiation Q&A:
- So does palliative radiation only indicated for symptom reduction and does not stop disease progression or control metastatic site?
- Is giving radiation after laparoscopic total hysterectomy with morcellation and chemo common to a uLMS stage 1b patient?
- What do you think about treating the localized alveolar rhabdomyosarcoma on extremities; radiotherapy vs proton therapy?

1:40:43 - Radiology- Shree R. Venkat, MD University of Miami-Miller School of Medicine
2:14:47 - Radiology Q&A:
- Why don't radiologists use cryo and IRE? We know a child that is in complete remission after 5 years of using IRE. What’s the difference between cryo and IRE?
- How do you choose between doing SBRT for pulmonary meds, ablation, or chemotherapy? Q14 - When is it better to do SBRT vs ablation in the lung regions?
- How as patients or caregivers can we know that the scan facility is using machines and settings that are effective for LMS? In particular, how do we figure out the minimum resolution for the scanners used for our specific scan?
- What's the ideal type of scan to monitor mets for uLMS primary?

2:27:03 - Nonprofit Session Pt. I - Shannon La Cava, PSY.D., Clinical Support Community (CSC) Los Angeles
2:35:33 - Nonprofit Session Pt. II - Jackie Herigodt, Imerman Angels
2:46:15 - Is Imerman Angels only for adults? Is it for children of cancer patients as well?
2:48:03 - Nonprofit Session Pt. III - Alyssa O’Driscoll, Sarcoma Alliance
2:56:06 - Regarding financial support for second opinions, could you please provide the contact information?
- is the Facebook group public and not private?

2:59:00 - Nutrition - Diana Torres, MPH, RD, CSO, Cedars-Sinai Health System
3:24:11 - Nutrition Q&A:
- When a patient is going through treatment, especially chemo, and the patient is reluctant to eat often and even main meals, what recommendations do you have for primary caregivers to handle the nutrition?
- Things like Gatorade are supposed to help replenish stuff from dehydration, but it’s so sugary. Are there more natural/homemade solutions to get electrolytes(?) back into the body?
- Any recommendations on protein supplements for vegetarians and vegans?
- How does this advice change with managing diabetes and other conditions?

3:30:15 - Roadmap to Resiliency Arash Asher, MD, Cedars-Sinai Health System

3:55:16 - Wrap Up and Closing Remarks Alyssa O’Driscoll, Executive Director, Sarcoma Alliance

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