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Make time for yourself and your family, too. It's OK to have someone take over caregiving duties for a while. Step back and take a break to rest and recharge.
Although there is no cure for MPS I, treatments can improve the quality of life -- especially when started early. They slow the disease and help stop damage before it starts.
People with MPS I can't make a specific protein called alpha-L iduronidase, which is needed to break down sugars. These sugars build up in cells and cause damage throughout the body.
People who have this disease can have problems with how their bodies grow and work, as well as trouble with thinking and learning. They might look different, too.
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