In the first session of our Tomorrow’s Leaders College Program, we heard from three adults living with cystic fibrosis — Joe Adderley, Rachel Kinney, and Kirk Astroth. Each presenter shared their individual journeys and provided a glimpse into their life with CF.
00:00 | Tomorrow’s Leaders College Program: A Peek into Life With CF
02:35 | How can you earn the networking, advocacy, and leadership digital badges from the CFF?
05:01 | What is cystic fibrosis and the physical effects of this disease?
06:21 | What is Teen Advocacy Day?
07:37 | What is Joe Adderley’s CF story?
12:48 | What is Rachel Kinney’s CF story?
24:24 | What is Kirk Astroth’s CF story and how did his late CF diagnosis affect his life?
34:33 | How can you manage CF while being social in college?
37:57 | What emotions do you feel after having a late CF diagnosis?
40:51 | How can the PASTEUR Act help with the mission of the CFF?
45:44 | Are there any other congressional bills pertaining to CF that our community needs to focus on?
49:35 | Time management tips to prioritize exercise as a way to maintain lung health
