This was a very vulnerable video for me to make but I wanted to share with you my symptoms of MALS in the hope that my experience helps someone else. MALS is so rare and hard to diagnose and often unheard of by many medical practitioners. Here are some of my symptoms as they presented from infancy through childhood, to hitting my worst and becoming tube fed, to now as they are improving. I hope you find this helpful. Also please note, nothing on my channel is ever medical advice, always talk to your medical team, take everything I say with a grain of salt and also know that many of these symptoms can cross over with other conditions.
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Here are links to my series of hospital vlogs sharing my experience getting my surgical feeding tube
Part 1:
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Part 2:
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Part 3:
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Part 4:
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Part 5:
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Recovering:
Week1:
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Week2:
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Week 3:
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Week 4:
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Week 5 (infection):
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Week 6 (Admission):
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Week 8 (Follow up after admission):
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Feeding Tube Playlist:
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Hospital Vlog Playlist:
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My surgical feeding tube experience playlist:
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Why I got a feeding tube:
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My Naso Feeding Tube Placement (Surgical Placement):
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My Naso Feeding Tube replacement (NG Tube non-surgical):
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My Link Tree:
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My Channel:
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Instagram:
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Facebook:
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