Meet Andrés, Charlie and Nicolas; they are affected with LMNA-CMD (LMNA- Congenital Muscular Dystrophy), a progressive muscle wasting disorder that also leads to respiratory and heart problems, for which currently there is no cure. They face with courage and resiliency the day to day reality of this condition, but they also have hope that through research we will find the cure for their ailments. On September 8, 2015, my son Nicolas will be part of a heart study carried out in Barcelona, ​​Spain, made possible by the Andrés Marcio Foundation, a non-profit organization. This is the only study in the world that focuses on the heart condition of children with LMNA-CMD, and aims to detect and provide early treatment for the heart deterioration of children afflicted with this fatal disease. Please be a part of this important study that will give children with LMNA-CMD the opportunity to live, and have a better quality of life. Make a pledge and help me reach my goal of US $7,700.00. Once again we ask for your support and solidarity to make this project possible and that our children’s hope will become reality.

Please click on the link to make a donation: [ Ссылка ]

Thanks, Ruben & Aty Piedra

свернуть