Hi I’m Marci. Mom of 4 kids. The youngest is Freya. She has a rare syndrome called Cornelia deLange Syndrome. Come along on this wild life as we figure out disability parenting a child with medical coumplexities and a limb difference. All while having fun and enjoying life.
In this video I talk all about Freya’s weight gain with Cornelia de Lange Syndrome. It has been a constant struggle to keep weight on her but she is doing amazing and I am so proud of all the work the whole family has done to help her gain weight.
