Former NPUK Trustee & International Niemann-Pick Disease Alliance (INPDA) President Jim Green explains what the INPDA is, and how important it is in our increasingly global Niemann-Pick community:
"...the developments that have happened to this point have been down to people working together and increasing the understanding. It became obvious with the formation of new groups around the world that there was a need to actually bring the groups together from different parts of the world - there was a need for the groups to actually meet and talk to each other, and share issues and information in the hope of facilitating progress..."
At NPUK we are a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. Our central goals are to raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies for NPD.
To learn more about Niemann-Pick UK (NPUK) and Niemann-Pick disease, please visit us at our site: http//www.npuk.org
