May is NF Awareness Month,
and the Children’s Tumor
Foundation is amplifying our
efforts to Make NF Visible.
Often patients with visible
signs of NF struggle to be seen
as more than just their NF, while
patients whose NF is invisible
struggle to make others
understand.
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Our thanks to this daughter and father, Brianna and William Gholston, for sharing their stories in this video.
NF refers to genetic conditions that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.
What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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