“Know Your Heart: Genetic Testing for Cardiomyopathy Families” was developed by the Children’s Cardiomyopathy Foundation to provide families with a basic overview of the genetic testing process. The video features families affected by cardiomyopathy, pediatric cardiologists, a geneticist and a genetic counselor and covers a range of topics, including what genetic testing is, when it should be considered, how the process works, and why it can be beneficial to certain families.
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About CCF:
The Children’s Cardiomyopathy Foundation (CCF) is a national non-profit organization dedicated to finding causes and cures for pediatric cardiomyopathy. CCF started in 2002 with one family’s determination to call attention to this poorly understood heart disease and to take action on the lack of medical progress and public awareness. Since then, CCF has grown into a global community of families, physicians and scientists focused on improving diagnosis, treatment and quality of life for children affected by cardiomyopathy, and has committed more than $10 million to research and treatment initiatives.
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