0:00 Start
0:01 #1.What is the difference between dementia risk genes and rare familial genes?
1:05 #2.Which genes are tested for?
1:45 #3.What happens in families with directly inherit dementia?
3:20 #4.What are the common misconceptions?
4:14 #5.Do I need to know which gene runs in my family?
9:50 #6.How do I get a genetic test for dementia?
11:09 #7.What if my doctor won't refer me for the test?
11:56 #8.Will getting my results affect my life insurance or mortgage?
Having a test to look for a faulty gene that causes dementia is only appropriate for a very small number of people. This is because only around one in 100 cases of dementia are directly inherited. In these cases, there is an obvious pattern of a parent passing it on to their child (or children) throughout every generation of a family, often developing symptoms in their 40s and 50s.
In this video, Prof Nick Fox, Director of the Dementia Research Centre at UCL (and specialist in familial Alzheimer’s disease) answers frequently asked questions about getting a genetic test for dementia.
Rare Dementia Support runs specialist support services for people living with, or affected by, rare dementias. Visit their website at [ Ссылка ]
The charity also provides regular support group meetings, newsletters, telephone contact networks and access to specialist information and advice.
The UCL Dementia Research Centre is a hub for patient-centred research into dementias. As well as clinical studies and trials in Alzheimer’s disease and other common causes of dementia, they have particular expertise in young onset, inherited and unusual dementias. Find out more here: [ Ссылка ]
To hear personal stories from people who have undergone genetic testing for dementia, click here: [ Ссылка ]
For more information about genes and dementia, visit our website: [ Ссылка ]
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