In this Vlog, Rory from The Sufferers Guide catches up with childhood friend and also fellow sufferer of Cystic Fibrosis Blake.
In this Vlog, Rory and Blake risk their own personal health by breaking CF quarantine law to discuss the benefits of Orkambi and their recent trial results.
Positive drug trials lead to the discussion of Orkambi being placed on the PBS...
Its time for the gorvernment to wake up and smell the roses. 🌹
