PRF’s 2022 PRF International Scientific Workshop – Race Progeria to the Cure, was an overwhelming success, bringing together 124 registrants from 14 countries. Leading physicians, researchers, and families with Progeria met in Boston, MA, to share the latest findings in Progeria research in an intense and informative 3-day period that set the stage for future efforts to discover new treatments and the cure for Progeria.
We kicked off opening night with our first-ever panel moderated by a young adult with Progeria, 27-year-old Sammy Basso, of Tezze sul Brenta, Italy. The panel also featured two others living with Progeria, Meg and Carlos, who captivated the audience by sharing the new and exciting activities they’ve recently accomplished in the past year. Quite excitingly, Meg recently graduated college and is now back to traveling the world! Opening night also a included a live zoom with children around the world, followed by a surprise musical performance by Dr. Francis Collins, Science Advisor to the President of the U.S. and whose lab led the discovery of the Progeria gene. Dr. Collins serenaded the audience with several popular songs with modified lyrics about PRF’s progress toward the cure. How special!
