In this video, Sandra will share the story of her family and the journey of Emmanuel. Emmanuel was diagnosed with congenital heart defect at the Montreal Children's Hospital. She will be answering these questions:

Please introduce yourself and tell us your personal story about coming to learn about congenital heart disease ?

Looking back at your experience while your son was hospitalized at birth for treatment of his heart malformation, please tell us what aspects of your relationship with the treating team that made the biggest impact in your ability to cope with the stress of being the mother to a child with a life-threatening heart malformation?

Reflecting on your experience while your son was hospitalized at birth for treatment of his heart malformation, please tell what aspects of the relationship with the treating team could have been improved on?

Please tell us about your experience of living with a child born with a cardiac malformation who benefited from a repair in the neonatal period.
Is there a personal message that you would like to send to other families who are confronted with the reality of having a child with a life-threatening cardiac malformation?

Sandra shares her journey and the impact of a diagnosis of congenital cardiac defect on their family life, as well as some messages for health care professionals and the families going through similar challenges.

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