In commemorating International Pompe Day on April 15, we are proud to host a special webinar, “Progress in Halting Pompe Disease,” to raise awareness of not only the disease but of ongoing efforts for better care and cure. This is the fifth complimentary webinar in the rare disease series, where we convene physicians, drug developers, patients, and advocates to critically examine the current state of rare diseases that impact more than 300 million patients worldwide.
You are welcome to learn more on our website: [ Ссылка ]
Below are our past events in the “Collaborations that Transform” series.
2020
Neurofibromatosis
Advances in Rare Diseases: Hemophilia
Spinal Muscular Atrophy (SMA)
Emerging Opportunities in Multiple Sclerosis and Neuroscience
2021
WuXi Rare Disease Awareness Concert on International Rare Disease Day
