"Palliative Care focuses on all the living." [ Ссылка ]

A palliative care nurse shares that it is the job of the team to help the family focus on the living and what that means -- how can we expand the opportunities for the living and celebration, how can we help them make memories. We don't assume that there is an obvious next step.
(The mom of two sons with mitochondrial disease and their pediatric palliative care nurse talk about how they worked together to get her sons comfortable.) If your child has mito, or another pediatric life threatening illness, this palliative care nurse, and mom share their guidance that may help you find your way. Visit www.courageousparentsnetwork.org to see more videos.

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