On September 22, 2022, the OI Foundation discussed the Longitudinal Study with Dr. Reid Sutton, Geneticist at Baylor College of Medicine, Administrative Director and Principal Investigator of the Brittle Bone Disorders Consortium (BBDC), and member of the OIF Medical Advisory Council and Board of Directors.
Dr. Sutton discussed the design of the study, its goals, and what researchers have learned so far. The Longitudinal Study of Osteogenesis Imperfecta, also known as the Natural History Study, is the largest research project ever conducted on people with OI.
0:00-8:50 Introduction and History
8:50-14:20 Longitudinal Study
14:20-20:52 Quality of Life Study
20:52-30:25 Oral Health and Craniofacial Development
30:26-33:41 Growth in OI
33:41-38:45 Phase 1 Safety Study of Fresolimumab
38:45-41:09 Opportunities for Research
41:09-59:52 Q&A
