ORIGINAL PODCAST RELEASE DATE: December 22, 2021
In this episode, host Chelsey chats with NMOSD patient and pediatric hematologist Dr. Joanna Robles, about her unique perspective and experience obtaining her NMOSD diagnosis. In their discussion, they review:
Important considerations for clinicians who make the NMOSD diagnosis and provide care.
Overview of the educational and training pathway for clinicians, including neurologists.
Review of the International Diagnostic Criteria for NMOSD.
Highlight the importance of a swift and accurate NMOSD diagnosis for appropriate treatment and management.
Stay tuned for a follow-up part 2 episode, in which Chelsey will chat with another NMOSD patient on 'After the NMOSD Diagnosis: Controlling What You Can.'
ABOUT US:
The Demystifying NMO podcast is a collaboration between the Sumaira Foundation (TSF) and the Connor B Judge Foundation (CBJF). This podcast is made possible with the generous support of Genentech.
SOCIAL & WEBSITE:
Dr. Joanna Robles
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Demystifying NMO podcast
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The Sumaira Foundation
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The Connor B Judge Foundation
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TIMESTAMPS/TOPICS:
00:01:18 Dr. Joanna Robles
00:05:07 The diagnostic process
00:06:51 Becoming a physician
00:13:16 Diagnostic criteria for NMO ( Wingerchuk et al. Neurology, 2015)
00:16:26 Seropositive diagnosis
00:17:07 Seronegative diagnosis
00:19:22 Adjusting to a new reality
00:21:40 The importance of a swift and accurate diagnosis
00:25:40 Insight as a patient and a clinician
ARTICLES:
Wingerchuk DM, Banwell B, Bennett JL, Cabre P, Carroll W, Chitnis T, de Seze J, Fujihara K, Greenberg B, Jacob A, Jarius S, Lana-Peixoto M, Levy M, Simon JH, Tenembaum S, Traboulsee AL, Waters P, Wellik KE, Weinshenker BG; International Panel for NMO Diagnosis. International consensus diagnostic criteria for neuromyelitis optica spectrum disorders. Neurology. 2015 Jul 14;85(2):177-89. doi: 10.1212/WNL.0000000000001729. Epub 2015 Jun 19. PMID: 26092914; PMCID: PMC4515040. [ Ссылка ]
CREDITS:
Executive Producer -
Host - Chelsey Judge
Editor - Brian Dawson
Cover Art - Sumaira Ahmed
Guest Photo - Sumaira Foundation
