Rare Disease Day, ASHUA Asociación Sindrome Hemolitico Uremico Atipico España (ashua.spain@gmail.com - (+34) 667 766 179 - Facebook: Ahus España Ashua)
Alone we are rare, together we are strong.
It's not just the slogan for the global campaign marking Rare Disease Awareness Day on February 29, 2012. It's also the rallying cry for "SOARING VOICES" a grassroots effort by patients, friends, and families who meet the challenges of a rare disease diagnosis with grace, dignity, and a positive attitude.
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