"Medical Orders: Making the Decision Together." [ Ссылка ]
The mom of two sons with Mito talks about how the palliative care social worker helped her husband and her deal with the MOLST form. I said to him, This is something we need to do TOGETHER. If your child has mitochondrial disease or another pediatric life threatening illness, this mom shares her perspective, which may help you find your way. Visit www.courageousparentsnetwork.org to see more videos.
