"I was diagnosed at 40 years old [...] my reaction was to cry [...] you are told you have something but you are happy to have it because it didn't come from you""

Alexandre has Pompe disease, a myopathy.
This rare hereditary genetic disease affects about one in every 70,000 births in France. Alexandre was diagnosed after years of misunderstandings and questions.

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7000027784 B - 01/2020

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