RAREsummit23 Testimonial from Joanna Davidge, LifeArc, a self funding research charity. Joanna explains how LifeArc are running a rare disease translational research centre challenge, about their work in vectors for #genetherapy and their #raredisease philanthropic fund. Joanna reminds us of how energising it is to attend event like RAREsummit23 to remind ourselves, as scientists and researchers, why we come to work each day and how hearing from patients first hand helps reinforce the importance of ensuring and supporting researchers to embed Patient and Public involvement and engagement in their work @LifeArcOfficial
