Don't try to fix it." [ Ссылка ]
Parents of a very medically complex son with life-limiting conditions (now 18) share that 'it' happens in phases and parents grow into each phase. It is a gradual progression. Take it one day at a time. Try not to think about the "What if's." Try not to plan.
If your child has Mitochondrial Disease or Dravet Syndrome, or another pediatric life threatening illness, these parents may help you find your way. Visit www.courageousparentsnetwork.org to see more videos.
